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Medical Conditions / Diseases

A Special Wish (ASW) Foundation

A non-profit charitable organization dedicated to granting the wishes to qualifying children under the age of 21 who have been diagnosed with a life-threatening disorder.
620 Taylor Station Road, Gahanna, Ohio 43230
(614) 258-3186
spwish.org

Center for Courageous Kids (CCK)

Offers summer camps and family retreat weekends for seriously ill children. Medical care is provided by volunteer physicians and nurses coordinated by a full-time medical director. They provide camps for kids with asthma, cancer, cerebral palsy, diabetes, blood disorders, muscular dystrophy, sickle cell, spina bifida and more.
1501 Burnley Road Scottsville, Kentucky 42164
(270) 618-2900
Camper Admission’s office: (270) 618-2912
courageouskids.org

Midwest Genetics Network (MGN)

Provides information and resources to help families learn more about rare disorders diagnosed through newborn screening. Families can find support and learn more about these rare conditions.
midwestgenetics.org

4 Paws for Ability

Provides training and place task-trained service dogs with children with disabilities to promote independent living. Any child with a disability is eligible to apply for a survive dog. They train a lot of different types of dogs, including hearing ear dogs, autism assistance dogs, mobility assistance dogs, seizure assistance dogs, diabetic alert dogs and more.
253 Dayton Avenue, Xenia, Ohio 45385
(937) 374-0385
4pawsforability.org

A Kid Again

With chapters throughout Ohio, A Kid Again provides free fun adventures, hospital visitations and parents’ nights out for families with children who have serious medical illnesses.
777-G Dearborn Park Lane, Columbus, Ohio 43085
(614) 797-9500
akidagain.org

Allergy & Asthma Network

Provides practical, easy-to-understand information on asthma and allergies and medically accurate ways to prevent and control symptoms.
8229 Boone Boulevard, Vienna, Virginia 22182
(800) 878-4403
allergyasthmanetwork.org

American Academy of Pediatrics (AAP) Kids Doc Symptom Checker

On this website, parents can search by a child’s symptoms and read information or receive advice about what steps to take.
healthychildren.org/english/tips-tools/symptom-checker

American Childhood Cancer Organization (ACCO)

Advocates and supports families that are experiencing childhood cancer. Join their email list to get the latest news about programs, resources and events. Learn how to raise awareness locally and support kids battling cancer.
6868 Distribution Drive, Beltsville, Maryland 20705
(855) 858-2226
acco.org

American Diabetes Association (ADA)

This national organization provides information about diabetes and advocates for children and adults with diabetes. Their information specialists can provide general information about diabetes and its management.
2451 Crystal Drive, Arlington, Virginia 22202
(800) 342-2383
diabetes.org

Asthma & Allergy Foundation of America (AAFA)

Offers educational resources and advocacy for all those affected by asthma and allergies. Go online to read about food allergies and asthma triggers. Find out about local chapters in your area.
8201 Corporate Drive, Landover, Maryland 20785
(800) 727-8462
aafa.org

Be The Match

They offer a comprehensive resource guide to assist patients with conditions such as leukemia and MDS. Planning information is provided for all the steps in the bone marrow transplant process, including selecting a transplant center, managing costs and preparing the family.
National Marrow Donor Program
500 North Fifth Street, Minneapolis, Minnesota 55401
(800) 627-7692
bethematch.org

Breathing Association

Offers chronic obstructive pulmonary disease (COPD), asthma and Ohio Benefit Bank (OBB) services; a free Lung Health Clinic and Mobile Medical Unit that provides caring medical and nursing services from a skilled professional staff. They also provide help with winter heating and summer cooling programs through HEAP, electric bill assistance and window air conditioners to those without central air for households who are medically needy. Sign up to receive free air quality alerts through the MORPC (Mid Ohio Regional Planning Commission) Air Quality Awareness Program.
1520 Old Henderson Road, Columbus, Ohio 43220
(614) 457-4570
breathingassociation.org

Camp Kesem at The Ohio State University (OSU)

Supports children in the Columbus community whose parent has cancer, by providing a free summer camp experience and year-long peer support. Camp Kesem is operated by student volunteers and serves approximately 150 campers ages 6-16 every year.
PO Box 3501, Columbus, Ohio 43210
(614) 908-3386
campkesem.org/ohio-state

Cancer Support Community of Central Ohio

Offers free emotional support, education and hope for people with cancer. Provides a full range of cancer wellness programs and services for all cancer patients of all ages, any diagnosis, any stage and their family members, and caregivers in a home-like setting. Cancer Support Community offers cancer-related information by phone in person, and online led by professional counselors available for adults and teens.
1200 Old Henderson Road, Columbus, Ohio 43220
(614) 884-4673
cancersupportohio.org

Central Ohio Diabetes Association (CODA)

Offers diabetes education services and programs, including diabetes camps and events for youth provided by a team of dietitians, nurses and social workers. Their camps provide a fun summer camp experience and helps kids with diabetes learn to live well with the challenge of diabetes. Day camps are available for youth ages 3 to 12, and their residential camp program, Camp Hamwi is for youth 7 to 17. Scholarships are available for any family who qualifies.
1100 Dennison Avenue, Columbus, Ohio 43201
(614) 884-4400
lifecarealliance.org/programs/coda

Chapel Hill House

Provides a free weekend getaway for Ohio children who have cancer and their families. Together they enjoy relaxation, games and family time in a log cabin and explore 70 acres of land on a golf cart.

  • Office: 6733 Hughes Road, Prospect, Ohio 43342
  • Mailing: PO Box 499, Prospect, Ohio 43342
  • Chapel Hill House: 3892 Morral-Kirkpatrick Road West, Morral, Ohio 43337

(740) 360-4273
chapelhillhouse.org

Childhood Cancer Family Connection (CCFC)

Offers a range of programs and services free of charge for children, teens and young adults throughout Ohio. Many of these children are undergoing treatment for their cancer, but members also include children in remission from cancer who offer hope and encouragement to newly diagnosed children. They provide free family activities, tutoring, counseling and support opportunities.
3440 Olentangy River Road, Columbus, Ohio 43202
(614) 262-2220
giveccfc.org

Children with Diabetes (CWD)

This is a helpful internet resource for parents of children with diabetes. Parents can connect with other parents, people with diabetes, and medical professionals for answers to their questions. The website provides a lot of information about school issues, local diabetes events and conferences, scholarship programs for kids with diabetes, camps for kids with diabetes, local support groups and more.
8216 Princeton-Glendale Road, West Chester, Ohio 45069
childrenwithdiabetes.com

Children’s Treehouse Foundation

Focuses on the well-being of children with parents that have been diagnosed with cancer. They provide emotional support, enhance communication skills, teach coping strategies, and provide the proper tools for children and families to stay strong and stay together through the new environment.
7500 West Mississippi Avenue, Lakewood, Colorado 80226
(303) 322-1202
childrenstreehousefdn.org

Columbus Public Health (CPH) Healthy Homes Program

Provides assistance and advice on creating a safe home environment. This program is for eligible residents in Columbus and Worthington. Services include:

  • Phone consultations
  • Information on asthma triggers and other household dangers
  • Mandatory lead inspections for homes with lead poisoned children
  • Free HEPA vacuum loan for lead hazard clean-up
  • Presentations to Columbus community organizations, neighborhood associations, day care centers, and school staff
  • Displays of healthy home educational information at fairs and special events
  • Referrals to services for landlords, tenants, and homeowners

240 Parsons Avenue, Columbus, Ohio 43215
Healthy Homes Contact: (614) 645-8191
Lead Poisoning Contact: (614) 724-6000
columbus.gov/publichealth/programs/healthy-homes

Comprehensive Adolescent / Adult Transitional Care Home (CATCH) Program

Program provides personalized medical care and social support services to teens and young adults, ages 17 or older, with chronic conditions transitioning from pediatric to adult healthcare. The members of the transition team are transition primary care doctors board certified in pediatrics and internal medicine, specialist doctors, transition coordinators, nurses, social workers and pharmacists. Visit the website for information on how a doctor can make a referral to their clinic.

  • Internal Medicine and Pediatrics at Grandview
    895 Yard Street, Columbus, Ohio 43212
  • Internal Medicine and Pediatrics at Hilliard
    3691 Ridge Mill Drive, Hilliard, Ohio 43026

(614) 293-7980
wexnermedical.osu.edu/primary-care/catch

Consortium on Children’s Asthma Camps

Coordinates the activities of asthma camps nationwide, provides camper information and a database on asthma camps.
490 Concordia Avenue, Saint Paul, Minnesota 55103
(651) 227-8014
asthmacamps.org

Coping Club

Offers online support to kids coping with a health condition, from other kids with similar health conditions. They have an extensive collection of parent-generated videos of kids sharing their experiences and encouragement, ways to handle stress, hospital stays and more.
copingclub.com

Cord Blood Banking

Provides free information for expectant mothers and families considering cord blood banking. Families may choose private banking for the safety of their family, or public banking to help patients in need of a transplant. The website has relevant, up-to-date information on benefits, pricing and current research for cord blood stem cells. Parents can also visit cordbloodguide.com for a free downloadable guide as well as user friendly content relating to cord blood, donating and how cord blood banking works.
(888) 894-6412
cordbloodbanking.com

Cure Search for Children’s Cancer

Offers a lot of parent and family information about childhood cancer. Parents can search for information, organized by cancer type, age group and stage of treatment.
4600 East West Highway, Bethesda, Maryland 20814
(800) 458-6223
curesearch.org

Dream Factory

Healthcare providers can refer their patients, ages 3-18, who have a chronic illness to this national program who offers to assist in making a child’s dream come true. A special trip, a favorite toy, an awesome visit from a special person could be possible for the patient who completes the process.
410 West Chestnut Street, Louisville, Kentucky 40202
(502) 561-3001
dreamfactoryinc.org

Fast VAX Facts Mobile App

An app that parents and caregivers can use to get trusted, factual information on immunizations. Search “Fast VAX Facts” in the App Store or on Google Play. Click the link below for more information.
ohioaap.org/FVF

Flying Horse Farms

Provides a free camp experience for children with serious medical illnesses such as cancer, heart disease, sickle cell disease, asthma and arthritis. 24-hour care is provided by specialized doctors and nurses, and the camp is free. Campers step outside of their sickness to experience activities such as canoeing, swimming, high rope experience and more.
5260 State Route 95, Mount Gilead, Ohio 43338
(419) 751-7077
flyinghorsefarms.org

Food for Good Thought

A non-profit that provides employment services, job training and sustained employment supports to individuals with autism. Their program EveryBody Works is a transition program that blends post-secondary education with paid work experiences. They employ individuals with autism in their gluten-free bakery, working with job coaches to develop skills.
4185 North High Street, Columbus, Ohio 43214
(614) 447-0424
foodforgoodthought.com

Gluten-Free Gang of Central Ohio, GIG (Gluten Intolerance Group)

A support group for those with celiac disease or gluten intolerance and their families and friends. Visit the website for local restaurants that offer gluten-free options and local classes. The Gluten Intolerance Group of Central Ohio also has a public Facebook group.
Facebook: facebook.com/groups/320392650815
National website: gluten.org

Juvenile Diabetes Research Foundation (JDRF)

Provides resources, including toolkit and care bags, and support services to connect with others for people of all ages diagnosed with type 1 diabetes.

  • Central Ohio Chapter
    100 West Old Wilson Bridge Road, Worthington, Ohio 43085
    (614) 464-2873
    jdrf.org/centralohio
  • International Office
    26 Broadway, New York, New York 10004
    (800) 533-2873
    jdrf.org/t1d-resources

Kids With Food Allergies (KFA)

Offers free tools, educational materials, webinars, videos and other resources to help families and caregivers learn how to keep children with food allergies stay safe and healthy. You can find allergy-specific recipes, updates from medical professionals, anaphylaxis and more. KFA is a division of the Asthma & Allergy Foundation of America.
kidswithfoodallergies.org

Leukemia & Lymphoma Society (LLS) Central Ohio Chapter

Serves people who have been affected by one of the blood cancers: leukemia, lymphoma and myeloma. People can participate in their local events, support groups and information programs. The chapter serves 38 counties in Ohio including Franklin, Clark, Licking, Allen & Muskingum.
2215 Citygate Drive, Columbus, Ohio 43219
(614) 476-7194
Contact informational specialists: (800) 955-4572
lls.org/central-ohio
National website: lls.org

LIVESTRONG

Provides free, confidential, one-on-one support to anyone affected by cancer, including not only people with cancer but also loved ones, friends, health care professionals and caregivers of someone diagnosed. Call the hotline for free information about financial help for those with cancer, finding a support group, employment issues and more.
2201 East Sixth Street, Austin, Texas 78702
General inquires: (877) 236-8820 Toll-free
Cancer Support: (855) 220-7777
livestrong.org

Make A Wish Foundation of Ohio, Kentucky & Indiana

Grants the wishes of children diagnosed with critical illnesses. The eligibility consideration process is started when a wish referral form is submitted to the local chapter. Visit the website to learn about who is eligible for a wish, who can refer a child and how the referral process works.
2545 Farmers Drive, Columbus, Ohio 43235
(614) 923-0555 or (877) 206-9474 Toll-free
oki.wish.org/refer-a-child
National website: wish.org

National Diabetes Education Program (NDEP)

Their website offers a lot of information about diabetes in English and Spanish, and lists steps to help control a person’s diabetes and live a long, active life.
National Institute of Diabetes & Digestive & Kidney Disease (NIDDK)
31 Center Drive, Bethesda, Maryland 20892
(800) 860-8747 or (866) 569-1162 TTY
niddk.nih.gov/health-information/communication-programs/ndep

Nationwide Children’s Hospital (NCH) Allergy & Immunology Clinic

Offers diagnosis and treatment of allergic diseases for patients from birth through age 21. The clinic’s expansive range of services includes allergy consultations, allergy shots, comprehensive asthma management plans, skin testing and more. On their website they also provide informational allergy videos and asthma resources.

  • Allergy, Asthma and Immunology Clinic
    Outpatient Care Center
    555 South Eighteenth Street, Columbus, Ohio 43205
  • Hilliard Allergy Clinic
    Hilliard Close To Home Center
    4363 All Seasons Drive, Hilliard, Ohio 43026
  • Westerville Allergy Clinic
    Westerville Close to Home on N. Cleveland Ave.
    433 North Cleveland Avenue, Westerville, Ohio 43082
  • Early Peanut Intervention Clinic
    Outpatient Care Center
    555 South Eighteenth Street, Columbus, Ohio 43205
    (614) 722-5112

(614) 722-5500
nationwidechildrens.org/allergy-immunology
To view asthma resources: nationwidechildrens.org/asthma-resources

Nationwide Children’s Hospital (NCH) Care Connection (School-Based Health Services)

Provide additional access to health care at your child’s school. The services provided are not meant to replace your pediatrician or family doctor. Care Connection programs include: Pediatric Services, Mental Health Counseling Services, Mobile Care Center, School-Based Asthma Therapy (SBAT) and Wheelchair Clinic.  Visit the website for the list of participating schools and additional contact information.

  • Pediatric Services: (614) 355-2590 or contact your school nurse
  • Mental Health Counseling Services: Contact Nationwide Children’s Behavioral Health Intake Department at (614) 355-8080 or contact your school counselor or school social worker to schedule an appointment
  • Mobile Care Center: (614) 203-2372
  • School-Based Asthma: (614) 355-5495 or contact your school nurse
  • Wheelchair Clinic: (614) 722-5810
  • General Questions: (614) 722-6053

nationwidechildrens.org/care-connection

Nationwide Children’s Hospital (NCH) Celiac Disease Center

Provides full care to children with celiac disease and their families, by providing their patients with an accurate and timely diagnosis, education on the dietary changes necessary for treatment, and ongoing care to promote good health and well-being. Also, they host an annual Celiac Conference and provide resources on their website.
700 Children’s Drive Columbus, Ohio 43205
(614) 722-3450
nationwidechildrens.org/specialties/celiac-disease-center

Nationwide Children’s Hospital (NCH) Clinical Research Studies

Visit the website to find a listing of all clinical research studies at Nationwide Children’s that are currently recruiting participants, from cancer and gene therapy, to adolescent health and diabetes, and more.
700 Children’s Drive, Columbus, Ohio 43205
(614) 722-2650
nationwidechildrens.org/research/clinical-research

Nationwide Children’s Hospital (NCH) Connecting Families

A hospital-wide family-to-family (peer-to-peer) mentor program. Connecting Families reaches patients of all diagnoses to link them with a family who has been through a similar treatment paths or life situations.
700 Children’s Drive, Columbus, Ohio 43205
(614) 722-6747
nationwidechildrens.org/connecting-families

Nationwide Children’s Hospital (NCH) Education Classes

Offers a range of free and low cost classes for children, teens, adults and parents of infants and kids of all ages and abilities. Find courses on everything from babysitting and parenting to CPR training, autism and diabetes. Example classes include:

  • Active Parenting
  • Adoption Academy – collaboration with Family & Youth Law Center to provide in-depth classes on foreign and domestic adoptions
  • ADHD Academy – for parents or caregivers of children with ADD/ADHD
  • Autism Academy – topic specific programs for parents and educators
  • Autism Teaching Strategies – for teachers
  • Basic Babysitter Training Class
  • Community Education for Diabetes
  • Parenting Your Child With Autism – for parents
  • Sibshops – for brothers and sisters of children with autism

700 Children’s Drive, Columbus, Ohio 43205
(614) 355-0662
nationwidechildrens.org/education-classes
Family and Youth Law Center (Adoption Academy): familyyouthlaw.org/academy.php

Nationwide Children’s Hospital (NCH) Endocrinology Clinic

Our bodies’ endocrine system glands produce hormones. When hormones become imbalanced, they can impact your child’s health and well being. NCH offers care for children and teens with diabetes and other endocrine system conditions, from adrenal disorders and cystic fibrosis to growth disorders and diabetes. They also offer support services for patients and families as well.
700 Children’s Drive, Columbus, Ohio 43205
(614) 722-4425
nationwidechildrens.org/specialties/endocrinology

Nationwide Children’s Hospital (NCH) Family Resource Center

Offers several services for families at Nationwide Children’s Hospital during their visit, including informational sessions, lounge, kitchen, laundry room, shower, breastfeeding room with breast pump, infant massage, massage therapy for adults, haircuts and more.
700 Children’s Drive, Columbus, Ohio 43205
(614) 722-2252
nationwidechildrens.org/family-resource-center

Nationwide Children’s Hospital (NCH) Health E-Hints

A free e-newsletter written by pediatric specialists and customized to meet the health and safety needs of your family. When you enter the ages of your own children, you’ll only get the articles that are relevant to your family.
700 Children’s Drive, Columbus, Ohio 43205
(614) 722-2000
nationwidechildrens.org/e-newsletter-sign-up

Nationwide Children’s Hospital (NCH) Health Library

Find information about the disease, condition, procedure or test you need. Also, find relevant information on various health topics for parents, kids and teens.
700 Children’s Drive, Columbus, Ohio 43205
(614) 722-2000
healthlibrary.nationwidechildrens.org

Nationwide Children’s Hospital (NCH) Helping Hands

Offers handouts for parents on a wide variety of topics such as flu, colic, when to stay home due to illness, ADHD and more.
700 Children’s Drive, Columbus, Ohio 43205
(614) 722-2000
nationwidechildrens.org/helping-hands

Nationwide Children’s Hospital (NCH) Hematology, Oncology & Blood & Marrow Transplant (BMT) Clinic

As a National Institute of Health (NIH) designated Comprehensive Cancer Center, they provide diagnosis, treatment and long-term management for pediatric and adolescent patients with any type of cancer.
700 Children’s Drive, Columbus, Ohio 43205
(614) 722-8860
nationwidechildrens.org/hematology-oncology-bmt

Nationwide Children’s Hospital (NCH) Pulmonary Medicine

Specialists diagnose, treat and research a wide range of respiratory disorders and diseases in children, including asthma, cystic fibrosis and advanced lung disease. In addition, their Sleep Disorders Center helps primary care physicians and specialists with the diagnosis and treatment of infants, children and teens with sleep problems.
700 Children’s Drive, Columbus, Ohio 43205
(614) 722-4766
nationwidechildrens.org/pulmonary-medicine

Nellie’s Champions for Kids (NC4K)

Helps make life a little easier for pediatric cancer families by providing them financial support and assistance, hospital support, family fun events, and more.
374 Morrison Road, Columbus, Ohio 43213
(614) 300-3995
nc4k.org

Patches of Light

Assists with emergencies such as auto repairs, housing for long distance care, airline tickets; Ronald McDonald House fees, extermination and/or purification items for bone-marrow patients’ homes and much more, for families with critically ill children.
Physical Address: 5000 Arlington Center Boulevard, Columbus, Ohio 43220
Mailing Address: PO Box 153, Hilliard, Ohio 43026
(614) 946-7544
patchesoflight.org

Research Match

Volunteers and patients can go onto this free website to enroll in research trials and studies going on at Nationwide Children’s Hospital and other hospitals nationwide.
researchmatch.org

Ronald McDonald House Charities (RMHC) of Central Ohio

Provides a home-away-from-home for families who have hospitalized children at Nationwide Children’s Hospital. A small donation is requested, but no family is ever turned away because of their inability to pay.
711 East Livingston Avenue, Columbus, Ohio 43205
(614) 227-3700
rmhc-centralohio.org

Sesame Street in the Communities

Offers providers and parents resources to help children thrive and deal with some common issues that affect children’s lives. Explore topics related to health and wellness, social-emotional skills, and school readiness.

1900 Broadway, New York, New York 10023
(212) 595-3456
sesamestreetincommunities.org
To view their additional toolkit: sesamestreet.org/toolkits

UnitedHealthcare Children’s Foundation (UHCCF)

Provides medical grants to help families access and pay for health care services that are not covered by their family’s commercial medical insurance plan. The medical insurance plan does not have to be through UnitedHealthcare. Learn more and apply directly on their website.
(855) 698-4223
uhccf.org