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Disability-Specific Resources

Cerebral Palsy

CP Parent Columbus & Reaching for the Stars (RFTS)

The central Ohio chapter, CP Parent Columbus, brings individuals and families living with cerebral palsy together to share information and community resources, personal experiences, advice and support.
3000 Old Alabama Road, Alpharetta, Georgia 30022
Local: (614) 868-0146
National: (877) 561-7387
reachingforthestars.org

Nationwide Children’s Hospital Cerebral Palsy Program

Devoted to children and adolescents with cerebral palsy. Families can see a variety of specialists in one clinic visit. Testing, such as x-rays or lab work, is available as needed. Families are linked with medical, educational, social and financial resources in the community as needed. The website also provides resource listings.
479 Parsons Avenue, Columbus, Ohio 43215
700 Children’s Drive, Columbus, Ohio 43205
(614) 722-5136
nationwidechildrens.org/cerebral-palsy-program

Down Syndrome

National Center for Prenatal & Postnatal Down Syndrome Resources

Supports new and expecting parents with accurate information about Down syndrome.

    • Brighter Tomorrows – Includes the most current research about Down syndrome, links to resources, and life glimpses.
    • Lettercase.org – Online booklet that includes basic information about Down syndrome and about families who have a child with Down syndrome; potential medical complications; resources about Down syndrome; and reproductive options.
    • Down Syndrome Pregnancy – Offers a website with a blog for women who are pregnant and expecting a baby with Down syndrome.

126 Mineral Industries Building, Lexington, Kentucky 40506
(859) 257-1714 Voice and TTY
downsyndromediagnosis.org

Down Syndrome Achieves

Focuses on research and funding, political advocacy and education. They also offer a strong network of support for parents who have a child with Down Syndrome.
PO Box 1596, Dublin, Ohio 43017
(614) 362-3441
dsachieves.org

Down Syndrome Association of Central Ohio (DSACO)

Offers resources, information, programs and services for families in central Ohio. They also have a helpline and numerous support groups for parents.
510 East North Broadway, Columbus, Ohio 43214
(614) 263-6020
dsaco.net

National Down Syndrome Congress

Their website offers information for new parents and professionals, speech and language resources, health care information, education, behavior tips and more.
30 Mansell Court, Roswell, Georgia 30076
(800) 232-6372
ndsccenter.org

National Down Syndrome Society (NDSS)

Their website provides a lot of resources and information about Down syndrome and a free helpline to answer questions about Down syndrome.
8 East Forty-first Street, New York, New York 10017
Toll-free National Helpline: (800) 221-4602
ndss.org

Nationwide Children’s Hospital Down Syndrome Clinic

Provides diagnostic and treatment services to children and adolescents with Down syndrome and their families. Services are covered by most insurance companies.
700 Children’s Drive, Columbus, Ohio 43205
(614) 355-8080
nationwidechildrens.org/down-syndrome

Dyslexia

Columbus Learning Center for Dyslexia

Helps keep students in regular educational programs and often allows them to avoid being qualified as learning disabled. They provide year-round tutoring to students with dyslexia.
290 Cramer Creek Court, Dublin, Ohio 43017
(614) 799-1261
helpusread.org

Central Ohio Branch of the International Dyslexia Association (IDA)

Provides the names of tutors who are knowledgeable in using multisensory techniques and other service providers in the area of dyslexia. The student’s parents and the tutor decide on the location, the number of sessions and financial arrangements.
PO Box 1601, Westerville, Ohio 43086
Helpline: (614) 899-5711
coh.dyslexiaida.org

Epilepsy

Epilepsy Foundation of Greater Cincinnati & Columbus

Serving 12 counties in central Ohio, they provide services to people living with epilepsy and seizures, as well as their families and caregivers. They help newly diagnosed children who have questions about the disorder and its treatment, parents in need of support, and youth in need of social opportunities. They have a free lending library, free referral to community resources, applications for medication assistance programs, scholarship opportunities, camp experiences and more.
Columbus office: 3857 North High Street, Columbus, Ohio 43214
(614) 725-1031 or (877) 804-2241
epilepsy-ohio.org

Epilepsy Foundation

This website provides in-depth information and resources for people living with epilepsy. Their focus is on helping those newly diagnosed with epilepsy or those struggling with epilepsy that has resisted treatment. The Epilepsy & Seizure Hotline is also offered 24-hours for information and referrals to support.
8301 Professional Place East, Landover, Maryland 20785
(800) 332-1000 or (866) 748-8008 Spanish
epilepsy.com

Nationwide Children’s Hospital Epilepsy Center

Provides diagnostic studies and evaluations for children and adolescents with epilepsy.
700 Children’s Drive, Columbus, Ohio 43205
(614) 722-6200 or (877) 722-6220
nationwidechildrens.org/neurology-clinics

Spina Bifida

Central Ohio Spina Bifida Alliance (COSBA)

Started in 2001 by parents caring for children with spina bifida, COSBA offers support to new families, organized social gatherings and helps with related financial needs.
(614) 332-3036
centralohiospinabifidaalliance.com

Other Special Needs

Cincinnati Children’s Alphabetical Listing of Condition-Specific Web Resources

Search through their online directory to find information and resources on specific disabilities, arranged in alphabetical order.
3333 Burnet Avenue, Cincinnati, Ohio 45229
(513) 636-7606
cincinnatichildrens.org/patients/child/special-needs/medical/disabilities

National Association for Rare Disorders (NORD)

Represents people with rare disorders. They have programs to help uninsured individuals in getting needed medications, provide a list of support groups for people with rare disorders, and information about rare diseases.
55 Kenosia Avenue, Danbury, Connecticut 06810
(203) 744-0100 or (800) 999-6673 or (884) 259-7178 Spanish
rarediseases.org

Nationwide Children’s Hospital Physical Medicine & Rehabilitation (PM & R)

Specializes in the diagnosis and management of children with physically disabling conditions. They provide a wide variety of services, including wheelchair and seating evaluations, prosthetic evaluations, rehabilitation services, electrodiagnostics and more.
555 South Eighteenth Street, Columbus, Ohio 43205
(614) 722-5050
nationwidechildrens.org/physical-medicine-rehabilitation

Region 4 Genetics Collaborative

Provides information and resources to help families learn more about rare disorders diagnosed through newborn screening. Families can find support and learn more about these rare conditions.
2364 Woodlake Drive, Okemos, Michigan 48864
National: (301) 718-9603
region4genetics.org