Social Security Dept.
A child might be eligible for 3 types of Social security benefits-
Social Security Dependents Benefits (SSDI)- for children of disabled or deceased parents
Supplemental Security Income (SSI)- benefits are payable to children under 18 years old who have disabilities (an impairment that is as severe as one that would keep an adult from doing any ‘substantial work for at least one year’, i.e. a disability that limits the child’s ability to do things and behave in the way that children of similar age group do.), and limited resources.
Medical Assistance- government funded health program (Medical Assistance and Medicaid are the same thing)-automatic for patients with severe impairments regardless of parental income. – 800-772-1213
Health Intervention Program (HIP) for Children with Special Health Care Needs
HIP helps parents and caregivers cope with their special needs child’s day-to-day health problems by working with families in their own homes to help create a personalized care plan. Services are provided by a team that includes a nurse, social worker, parent-professional and counselor – Following are referral areas:
- LaSalle Nursing Center (NW, North and lower NE Phila)- 1900 West Olney Ave- 215-951-5034
- Congreso de Latinos Unidos Serving North and North Central Philadelphia 215-763-8870 ext. 190
- Health Promotion Council Serving South, West and Southwest, Center City and parts of North and Northeast Philadelphia 267-765-2307
The Special Kids Network
A free, statewide service for families with children who have special needs. They will connect parents with resources and support services in their communities, including: advocacy; home health; legal rights; support groups; summer camps; therapies; medical equipment; MA questions; private schools and more- Hours M-F 8:30-4pm-800-986-4550
Children with Special Health Care Needs (CSHCN)
A division of the Phila. Dept. of Public Health; Maternal, Child&Family Health Division. This unit can help both families and professionals who are looking for help in navigating the sometimes complex systems that address the needs of CSHCN (birth-21) in the Philadelphia area- call 215-685-5232
United Cerebral Palsy of Philadelphia (UCPA)
This is a multi-service agency for children and adults with cerebral palsy and developmental disabilities. They offer home and center-based programs, advocacy, referral and information about resources for children with special needs- 102 E. Mermaid Lane- 215-242-4200
Dozens of Programs throughout Philadelphia and SE PA for children with Special Health Care Needs. Call 215-879-1000 or go to website for info.
Parent to Parent of Pennsylvania
Links families and friends of children with special needs, provides technical assistance, training- 888-727-2706
Parents Involved Network of PA
Assists parents of children who have emotional or behavioral disorders, are receiving mental health system services, or are receiving special education services- advocates for these children, and provides information- 1211 Chestnut St.- 215-751-1800.
Philadelphia Dept. of Education Special Ed. Consult Line
Main phone number for most issues relating to Philadelphia school system- 800-879-2301
Office of Specialized Services of the School District of Phila.
The Office of Specialized Services (OSS) is committed to the educational, social, physical, and emotional well being of students within the School District of Philadelphia. The OSS provides comprehensive special education, behavioral health, school health, and prevention/intervention programs. 215-400-4170
Special Education Guide
The go-to resource for mastering the terminology, procedures and best practices in special education.
Click here for link to guide
CONNECT Early Intervention Hotline
Information and referral services to parents of children with disabilities who are less then 3 years old- 800-692-7288
COMHAR (Community Organization of Mental Health and Retardation)
Helps people of all ages and cultures in the community who have developmental disabilities, mental health concerns, physical limitations and other challenges- Children’s Service at 3825 Whitaker Ave- 215-427-5756
Variety Philadelphia has several programs for children with special needs and autism including: after school programs and camps; autism resources; and medical equiptment. 100 N 18th Street, Suite 300 Call 215-735-0803 for info
Vision for Equality
Mission is to assist and empower people with disabilities and their families to seek quality and satisfaction in their lives as well as equal access to supports and services. 718 Arch Street. Call 215-923-3349.
HUNE (Hispanos Unidos Para Ninos Excepcionales)
HUNE provides free bilingual English and Spanish training, technical assistance and individual assistance to parents of infants, toddlers, children, and youth with disabilities and to professionals who work with children. 2215 N American Street Call 215-425-6203.
PA Assistive Technology Foundation
The Pennsylvania Assistive Technology Foundation (PATF) is a non-profit organization that provides low-interest loans to people with disabilities and older adults so that they can buy the assistive technology devices and services they need. Call 484-674-0506.
Assistive Technology Resources
See links below for info on assistive telecommunications (free phones and other technology) for eligible persons. Click here for Telecommunication Device Distribution Program (TDDP) or PA’s Initiative on Assistive Technology
PA Elks Home Service Program
Consultation with Special Needs program to assist with: home care and equiptment; finding adaptive clothing and toys; and getting advise on educational and treatment issues. Call 814-781-7860.
PA Medical Home
Information for parents and health care professionals who take care of children with special health care needs.
The ARC of Philadelphia
Dedicated to ensuring that each person with intellectual disability will reach his/her potential and exercise his/her right to choose where and how to live- 2350 W. Westmoreland St.- 215-229-4550
Office of Vocational Rehabilitation (OVR)
State agency that helps people with disabilities help themselves to prepare for, start, and maintain a career- 444 N. Third Street- 215-560-1900
● Special Needs Daycare ●
Frankie’s World Day Care
Frankie’s World is a daycare for children with special healthcare needs. We provide skilled nursing care, OT, PT, and speech therapy for children that qualify ages infants through 8 years. Transportation is also provided for children that require it. 1011 Poplar Street. Call 215-763-0151.
Lauren’s House is a loving, caring Center for Special Needs Children.
Lauren’s House is a licensed Prescribed Pediatric Extended Care Center (PPECC) by the Commonwealth of Pennsylvania. 3 locations: North Philly 888-340-9430; Coatsville 877-589-0854; and Boothwyn, Delaware County 888-340-9420. Lauren’s House is a brand new state of the art center, operated by professional personnel with years of pediatric experience. Call 888-340-9420.
Pediatria Healthcare for Kids
Pediatria Healthcare for Kids Private Duty Nursing provides RN, LPN and Home Health Aide services to families with special needs children as ordered. We provide such services up to 24 hours a day, and up to 7 days a week. We can also provide skilled nursing visits for teaching, home and health assessments and iv infusions.
Pediatria Healthcare for Kids Day Health program is a day health center for special needs children from birth to age 8. Bus transportation is provided. Hours of operation are 6:30AM – 6:30PM, Monday through Friday. We set ourselves apart from others with our age appropriate classrooms, therapy gym, and both indoor/outdoor play areas. Meals are provided. Call 215-376-6801 for info. 8101 Washington Lane Wyncote, PA 19095
Ventilator Assisted Children’s Home Program
The Ventilator Assisted Children’s Home Program promotes high quality, cost-effective care of the ventilator assisted child in the home and supports the family in coping with this extraordinary endeavor. Call 1-267-425-9408 for info.
● Dental Care ●
Elwyn Dental Clinic
Dental clinic for children with special health care needs. State of the art full service dental facility with full accessibility. 4040 Market Street. Call 215-895-5533 for appointments.
Special Smiles Ltd.
Denatl care for children with special needs. 100 E. Lehigh Ave., Centennial Two 215-707-0575
Dental Handouts for Kids with Special Health Care Needs
Click link below and choose category for handout.
● Legal Resources ●
Legal Clinic for the Disabled Children’s Health Initiative
Helping low-income families of children with disabilites resolve health care coverage issues. Provides FREE legal services on a variety of issues, including the Medical Assistance grievance process. Call 215-587-3350.
Disabilities Rights Network of PA
Hotline to answer most questions concerning: special education, health, early intervention and the rights of a child or adult with special needs. Call 1-800-692-7443 for info.
Education Law Center
Promoting fairness and quality education in the public school system, and helping families understand and enforce their legal rights, from prompt early intervention services, children whose native language is not English, and children with disabilities- 1315 Walnut Street, 4 th Floor – 215-238-6970
● Transportation ●
Logisticare Medical Transportation
Logisticare provides transportation services for children with special health care needs or ANY child who recieves medical assistance and Medicaid. Call at least 3 days in advance and up to 30 days in advance to schedule a pick-up- 877-835-7412.
● Miscellaneous ●
CHOP Transition Support Programs
CHOP’s “REACH” programs are designed to help families, and young adults with disabilities, learn how to transition to adulthood. REACH’s mission is to prepare youth 14 to 24, with special healthcare needs, for a successful transition into adulthood by providing peer support, guidance and resources. Click here for info or call 215-590-7444.
Epilepsy Foundation of Eastern PA
Amazing organization for families and providers caring for persons affected by Epilepsy. Go to www.efepa.org for information.
CHADD (Children and Adults with ADD)
The nation’s leading non-profit organization for children and adults affected by ADD/ADHD-800-233-4050
Kelly Anne Dolan Memorial Fund
The Kelly Anne Dolan Memorial Fund is a non-medical resource center that provides advocacy, education, information, and financial assistance for needs not covered by insurance to families caring for terminally, critically, and chronically ill, severely disabled, or seriously injured children. Call 215-643-0763 for info.
Special Olympics of Philadelphia
Many sports for children with special needs. 2900 Southhampton Road. Call 215-671-5069 for info.
Also runs Special Olympics Young Athletes Programs for kids 2-7 years old. Click here for details.
Sports programs for children with disabilities. Go to website for more info.
National Center for Learning Disabilities
Call 888-575-7373 for info
National Down Syndrome Society
Trisomy 21 (Down Syndrome) Program at CHOP
This program assesses the developmental, behavioral and health needs of children and adults with Down Syndrome. Also, they can coordinate community resources for families affected by Down as well as referral to parent support groups. Call 267-426-5283.
● Autism Resources ●
The Center for Autism
Autism Information Lines (“warm lines”)
Contact below for information about Autism resources in Philadelphia.
The Autism Society of America
The Autism Society of America, Greater Philadelphia Chapter was established in 1977 by a dedicated group of parents with a strong desire to band together and be a united voice to represent individuals with Autism Spectrum Disorders and spread awareness.
Click this link for safety toolkit
Autism Sharing and Parenting
Parent support group that meets monthly. Call 215-413-7106 or go to site
A unique collection of video tools to help families and health care professionals learn the early signs of autism, and how to advocate for families who have an autistic child.
Autism Centers of Excellence (ACE) in Philadelphia
For autism evaluations and enrollment in various autism research programs.
SW Philly-Child Guidance Resource Center 2901 Island Avenue 267-713-4100
Center City-NE Treatment Center 499 Spring Garden Street 855-ASD-PACE
NE Philly-SPIN 10541 Drummond Road 215-612-7625
Center for Autism Reasearch’s Autism ROADMAP
- Learn about Autism Spectrum Disorder, including symptoms, diagnosis, and the impact on families and individuals
- Get the latest information on treatments and therapies and how to get services
- Connect with resources for children, youth, and adults
START HERE>>>> http://carautismroadmap.org/
The Center for Autism Research (CAR)
The CAR at CHOP/UPenn is looking for the causes of autism spectrum disorders and is developing new treatments for children and adults with autism. We study infants who have a brother or sister already diagnosed with autism. We also have research studies for toddlers, school-aged children, and adults. Families who take part in our research studies receive evaluation reports and are paid for their time and travel costs. Call 1-866-570-6524.
Autism Cares Foundation
Autism Cares Foundation provides children, young adults and families with recreational activities, outings and events at no charge primarily in Bucks and Montgomery Counties as well as for Philadelphia residents. These events provide life-skills development and social interaction for those on the autism spectrum. They include: bounce outings, bowling, social activities and dances, family movies, music events as well as physical fitness activities and arts and crafts from first diagnosis as toddlers into adulthood.
Advocacy group dedicated to increasing awareness of autism spectrum disorders; and advocating for the needs of individuals with autism and their families. Website includes many resources for families.
English number → (888) 288-4762 En Español(888) 772-9050
Sesame Street Autism Initiative
See amazing resource from Sesame Street for families with autism that promotes understanding from all families/communities. http://autism.sesamestreet.org/
ASERT (Autism Services, Education, Resources, and Training) Collaborative
ASERT is a statewide initiative funded by the Bureau of Autism Services, PA Department of Public Welfare. The ASERT Collaborative is a partnership of medical centers, centers of autism research and services, universities and other providers of services involved in the treatment and care of individuals of all ages with autism and their families. The ASERT Collaborative has been designed to bring together resources locally, regionally, and statewide.
877-231-4244 (Monday-Friday 8AM-5PM)
Understanding Autism Videos-Asian Families
Click here for video to help Asian families with understanding developmental delays and autism. In Japanese, Nepoli, Indonesian, Chinese and English.
Autism Checklist for Toddlers (MCAT)
Elwyn Autism/Special Needs Resource Guide
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