With chapters across the county and throughout Ohio, A Kid Again provides free fun adventures, hospital visitations and parents’ nights out for families with children who have a life-threatening medical illness. Visit the website to find your local chapter, upcoming Adventures, and enroll online for free.
777-G Dearborn Park Lane, Columbus, Ohio 43085
(614) 797-9500
akidagain.org/chapter/central-ohio-chapter
Serves: Students ages 3-21, individuals, and families.
Agency providing services for individuals with autism and other neurological disabilities. Services include intervention training and support, customized and individualized learning options through the Ohio Autism Scholarship Program, and independent supportive living. The Beyond Ability Matters program provides housing, educational experiences like preparing for a job interview, and community outings. Services are offered by trained and experienced care providers.
425 Metro Place North, Dublin, Ohio 43017
(614) 956-1229
abilitymattersohio.com
Beyond Ability Matters: beyondabilitymatters.com
Serves: Children, teens, individuals, and families with ID/DD and/or behavioral health challenges.
Provides person-centered care to people with intellectual and developmental disabilities and behavioral health challenges. They offer primary care, dental, psychiatry, outpatient behavioral health, community-based ABA, care coordination, long-term and temporary residential support, in-home and out-of-home respite services, day programs, and afterschool programs. Family Support Services are provided by the State of Ohio for families who need help keeping their loved one at home. Services vary by location, find details and request an appointment on their website.
(800) 409-2729
iamboundless.org
Offers free summer camps and family retreat experiences for seriously ill children, in a safe, medically supervised environment. Medical care is provided by volunteer physicians and nurses coordinated by a full-time medical director. They provide camps for kids with asthma, cancer, cerebral palsy, diabetes, blood disorders, muscular dystrophy, sickle cell, spina bifida and more.
1501 Burnley Road, Scottsville, Kentucky 42164
(270) 618-2900
courageouskids.org
Serve those living with epilepsy and seizures, as well as their families and caregivers. They offer counseling services, art therapy, scholarships, summer camps, residential group homes, virtual and in-person support groups, referrals to community resources, community education, and more. Their website also has helpful information about understanding epilepsy and joining clinical trials.
Provides in-depth information and resources for people living with epilepsy. The Epilepsy & Seizure Hotline is also offered 24-hours for information and referrals to support. They have free, online courses for individuals and professionals on topics like Seizure Safety and Navigating the Workplace with Epilepsy. You can also find information on help paying for prescriptions, clinical trials and research, camps and family programming, support groups, and more.
3540 Crain Highway, Bowie, Maryland 20716
Technical Support: (800) 332-1000
24/7 Epilepsy & Seizures Helpline: (800) 332-1000 or (866) 748-8008 for Español
epilepsy.com
Legal Defense Fund through the Epilepsy Foundation, to help end epilepsy-related discrimination. Their Attorney Network is made of experience attorneys who have agreed to provide some level of free legal services. They can help with cases related to employment, education, public accommodations, police and first responder services, housing, healthcare, and criminal justice. Go online to complete an Application for Assistance.
(800) 332-1000
epilepsy.com/living-epilepsy/legal-help
Application for Assistance: epilepsy.com/forms/application
Provides resources, tools, and trainings to help individuals and families of individuals with developmental disabilities. Their website has database of programs and organizations across Ohio for helpful products, therapy, schools, legal help, clinical trials, and more. They use Charting the LifeCourse principals to help individuals and families of all abilities and ages develop a vision for a good life, and regular LifeCourse trainings are available for families and professionals.
The Ohio State University Nisonger Center
1581 Dodd Drive, Columbus, Ohio 43210
Family Resource Coordinator: (614) 293-2134
Family Support Coordinator: (513) 636-4723
frnohio.org
Offers free guidance on workplace accommodations and disability employment issues. JAN consultants offer one-on-one guidance on workplace accommodations, ADA and related legislation, and self-employment and entrepreneurship options for people with disabilities. Assistance is available both over the phone and online. Their website also has helpful information on a wide range of medical conditions with related resources and accommodations.
Voice: (800) 526-7234
TTY: (877) 781-9403
Text: (304) 216-8189
askjan.org
Provides free adaptive bikes to children and young adults with conditions like Spina Bifida, Cerebral Palsy, Down Syndrome, Hydrocephalus, Autism, and more. Families may contact the organization directly to start the application process, which includes an application, interview, and letter from the family’s therapist. Wait times vary by state.
8305 Tom Drive, Baton Rouge, Louisiana 70815
(225) 456-3505
mclindonfamilyfoundation.org
Provides non-emergency, long-distance ground transportation for patients traveling for treatment. Patients must be ambulatory and meet income guidelines. Patients may receive gas cards, bus, train, or airline tickets. Trips within a local area or community is typically not handled, but exceptions may be made on a case-by-case basis. Visit the website for contact information.
101 West Main Street, Norfolk, Virginia 23510
mercymedical.org
Helps veterans and people with disabilities find information, support, and referrals for disability-related services. They also provide adaptive equipment loans, peer support groups, living skills classes and transition services.
1829 East Long Street, Columbus, Ohio 43203
(614) 443-5936
mobileonline.org
Health organization serving people living with muscular dystrophy, ALS, and related neuromuscular diseases. The website has great information on various diseases and treatments, a searchable directory to find care providers across the country, resources on research and joining a clinical study, and community education materials. They host an annual summer camp for kids and young adults with neuromuscular disease at no cost to families, with in-person and virtual options. Families can call the Resource Center for one-to-one support and help finding resources.
1016 West Jackson Boulevard, Chicago, Illinois 60607
Corporate Office: (800) 572 1717
Resource Center: (833) 275-6321
mda.org
Provides individualized treatment for children, adolescents, and young adults with physical disabilities. Services include injury evaluation, rehabilitation, and adaptive athletic training.
Dublin Sports Medicine and Orthopedic Center
5680 Venture Drive, Dublin, Ohio 43017
(614) 355-6000
nationwidechildrens.org/adaptive-sports-medicine-program
Level-4 Epilepsy Program providing comprehensive pediatric epilepsy care. Provides neurodiagnostic evaluations and monitoring, and extensive medical, neuropsychological and psychosocial treatment for children and adolescents with epilepsy.
700 Children’s Drive, Columbus, Ohio 43205
(614) 722-4625 or (614) 722-6200
nationwidechildrens.org/epilepsy-center
Provides a full range of homecare services to Central Ohio children of all ages, from newborns through young adults. Homecare offers the following areas of service:
255 East Main Street, Columbus, Ohio 43215
(614) 355-1100
nationwidechildrens.org/homecare
Provides developmental occupational therapy (OT), speech and language therapy, and physical therapy (PT) services. Services are provided at the main hospital and at many clinic locations throughout the community, for children from birth to age 21.
700 Children’s Drive, Columbus, Ohio 43205
(614) 722-2200
Occupational Therapy: nationwidechildrens.org/specialties/occupational-therapy
Speech Pathology: nationwidechildrens.org/specialties/speech-pathology
Physical Therapy: nationwidechildrens.org/specialties/physical-therapy
Specializes in the diagnosis and management of children with physically disabling conditions. Services include wheelchair and seating evaluations, prosthetic evaluations, spasticity management, electrodiagnosis, and more.
700 Children’s Drive, Columbus, Ohio 43205
Cerebral Palsy Clinic: (614) 722-5136
Myelomeningocele Clinic: (614) 722-5775
Botox, Concussion, Electrodiagnostic, Physical Medicine, and Seating Clinics: (614) 722-5050
nationwidechildrens.org/physical-medicine-rehabilitation
Waivers are programs that help Ohio Medicaid customers with special needs remain at home instead of being in a nursing home, hospital, or facility. They provide financial assistance to families, and there is typically a waiting list. Services may include personal care, transportation, respite services, supported employment, nutrition services, assistive devices, home modifications and interpreter services. See further information about Ohio waiver programs below.
50 West Town Street, Columbus, Ohio 43215
Consumer Hotline: (800) 324-8680
medicaid.ohio.gov
The Department of Developmental Disabilities is a statewide system of supports and services for people with developmental disabilities, and their families. Each county in Ohio has its own Board of Developmental Disabilities, which is the place to start for determining eligibility, assessing your needs, and coordinating which services can best support you. Their offices can help you with early intervention programs, healthcare services, waivers and scholarships, job training and employment, unusual incident reporting, and more.
Online resource directory supporting families and children with life challenges, disabilities, and healthcare needs from prenatal to age 25. The website helps families find resources and organizations to meet their specific needs and challenges. Users can customize profiles by location (counties within Ohio), age ranges, medical conditions, and topics of interest.
redtreehouse.org
Provides safety beds and solutions to improve quality of life for children and adults with disabilities, whether at home or traveling. Families can go online to order a permanent bed, travel bed, and other safety items. The beds are Medicaid-approved in Ohio and the company provides liaison services to coordinate care between your physician and insurance. Their in-house physical therapist can assist with Letter of Medical Necessity if needed.
Call or Text: (614) 602-5196
Program Brochure
Website: safeplacebedding.com
A free program for children with serious medical conditions and disabilities ages 5-16. Children are paired with sports teams at colleges and universities across the state of Ohio with the goal of creating meaningful, long-lasting relationships with student athletes. Kids experience positive social-emotional development and a sense of belonging through inclusion, support and team engagement. Go online to find a participating team near you and apply.
National Office: 500 Victory Road, Quincy, Massachusetts 02171
(317) 709-7658
teamimpact.org
Provides care for children, adolescents, and adults with cerebral palsy, muscular dystrophy, spina bifida, spinal cord injury, and other neuromuscular disabilities at multiple locations through Cincinnati Children’s Hospital. Services include case management, occupational therapy, speech therapy, and early childhood integrated therapies. They also provide comprehensive assistive technology evaluations for all ages.
(513) 636-4601
3333 Burnet Avenue, Cincinnati, Ohio 45229
5642 Hamilton Avenue, Cincinnati, Ohio 45224
9560 Children’s Drive, Mason, Ohio 45040
cincinnatichildrens.org/service/a/aaron-perlman-center
Nonprofit working to raise awareness, advance research, and provide support to patients and families impacted by Tourette Syndrome and Tic Disorders. Find health information for kids, families, and professionals, toolkits on topics like bullying and transition to adult care, online events, and information on research and clinical trials. They also have online support groups for parents, teens, LGBTQ+, and Spanish-speaking community members.
42-40 Bell Boulevard, Bayside, New York 11361
(888) 486-8738
tourette.org
Promotes independence and inclusion for people with cerebral palsy, intellectual, developmental, and other disabilities. Their website has tons of helpful Resources including a Guide to Homebuying for people with disabilities, disability etiquette, healthcare resources, and more. UCP of Greater Cleveland offers a Mobility Clinic for Assistive Technology assessment and equipment fitting. They also offer therapy and education services for children, and adult day services.
UCP National Office: 8401 Old Courthouse Road, Vienna, Virginia 22182
(800) 872-5827
ucp.org
UCP Greater Cleveland: 10011 Euclid Avenue, Cleveland, Ohio 44106
(216) 791-8363
ucpcleveland.org