The central Ohio chapter, CP Parent Columbus, brings individuals and families living with cerebral palsy together to share information and community resources, personal experiences, advice and support.
National: (877) 561-7387
Local: (614) 868-0146
reachingforthestars.org
CP Parent Columbus: facebook.com/cpparentcolumbus
Devoted to children and adolescents with cerebral palsy. Families can see a variety of specialists in one clinic visit. Testing, such as x-rays or lab work, is available as needed. Families are linked with medical, educational, social and financial resources in the community as needed. The website also provides resource listings.
479 Parsons Avenue, Columbus, Ohio 43215
700 Children’s Drive, Columbus, Ohio 43205
Referral: (614) 722-5136
nationwidechildrens.org/cerebral-palsy-program
Focuses on research and funding, political advocacy and education. They also offer resources for parents who have a child with Down Syndrome. Visit the website or their Facebook page to receive DSA updates and news.
PO Box 1596, Dublin, Ohio 43017
(614) 362-3441
dsachieves.org
facebook.com/DSachieves
Offers resources, information, programs and services for families in central Ohio. They also have a helpline and numerous support groups for parents.
510 East North Broadway, Columbus, Ohio 43214
(614) 263-6020
dsaco.net
Offers information for new parents and professionals, speech and language resources, health care information, education, behavior tips and more.
30 Mansell Court, Roswell, Georgia 30076
(800) 232-6372
ndsccenter.org
Their website provides a lot of resources and information about Down syndrome and a free helpline to answer questions about Down syndrome.
Headquarters: 8 East Forty-first Street, New York, New York 10017
National Advocacy & Public Policy Center: 1100 H Street Northwest, Washington, DC 20005
National Helpline: (800) 221-4602
ndss.org
Provides diagnostic and treatment services to children and adolescents with Down syndrome and their families. Families are linked with medical, educational, social and financial supports in their communities as indicated and resources identified to assist them in meeting the unique needs of their child.
700 Children’s Drive, Columbus, Ohio 43205
(614) 722-4050
nationwidechildrens.org/down-syndrome
Provides information about Down syndrome and other prenatally-diagnosed conditions for expectant parents and new parents through three different resources.
Helps keep students in regular educational programs and often allows them to avoid being qualified as learning disabled. They provide year-round tutoring to students with dyslexia.
290 Cramer Creek Court, Dublin, Ohio 43017
(614) 799-1261
Local: helpusread.org
National (Children’s Dyslexia Centers): childrensdyslexiacenters.org
Promotes and shares information about effective teaching methods for youth with dyslexia to help them read.
PO Box 1601, Westerville, Ohio 43086
(614) 899-5711
coh.dyslexiaida.org
National: dyslexiaida.org
Serving 12 counties in central Ohio, they provide services to people living with epilepsy and seizures, as well as their families and caregivers. They help newly diagnosed children who have questions about the disorder and its treatment, parents in need of support, and youth in need of social opportunities. They have a free lending library, free referral to community resources, applications for medication assistance programs, scholarship opportunities, camp experiences and more.
Provides in-depth information and resources for people living with epilepsy. Their focus is on helping those newly diagnosed with epilepsy or those struggling with epilepsy that has resisted treatment. The Epilepsy & Seizure Hotline is also offered 24-hours for information and referrals to support.
8301 Professional Place East, Landover, Maryland 20785
24/7 Epilepsy & Seizures Helpline: (800) 332-1000 or (866) 748-8008 Spanish speaker only
epilepsy.com
Provides diagnostic studies and evaluations for children and adolescents with epilepsy. You can connect with their Epilespy team on Facebook as well.
700 Children’s Drive, Columbus, Ohio 43205
Epilepsy Center/Neurology: (614) 722-4625
nationwidechildrens.org/epilepsy-center
facebook.com/EpilepsyCenter
Started in 2001 by parents caring for children with spina bifida, COSBA offers support to new families, organized social gatherings and helps with related financial needs. Visit the website for contact information.
centralohiospinabifidaalliance.blogspot.com
Provides an individualized treatment experience for children, adolescents and young adults with physical disabilities for injury evaluation and athletic training.
Dublin Sports Medicine and Orthopedic Center
5680 Venture Drive, Dublin, Ohio 43017
(614) 355-6000
nationwidechildrens.org/adaptive-sports-medicine-program
Provides complete, long-term treatment services to children with spinal abnormalities. Children with spinal abnormalities are seen by a variety of specialties, which may include: Developmental Pediatrics, Genetics, Neuropsychology, Neurosurgery, Occupational Therapy, Ophthalmology, Orthopedics, Physical Medicine, Physical Therapy, Social Work, and Urology.
555 South Eighteenth Street, Columbus, Ohio 43205
(614) 722-5725
nationwidechildrens.org/myelomeningocele-spina-bifida-clinic
Search through their online directory to find information and resources on specific disabilities, arranged in alphabetical order.
cincinnatichildrens.org/patients/child/special-needs/medical-health/conditions
Offers a week-long overnight summer camp for youth ages 6 to 18 who have limited mobility or use wheelchairs. Youth can attend camp at no cost to their families. Visit the website for additional contact information.
National Office: 161 North Clark, Suite 3550, Chicago, Illinois 60601
(800) 572-1717
mda.org/summer-camp
mda.org
Represents people with rare disorders. They have programs to help uninsured individuals in getting needed medications, provide a list of support groups for people with rare disorders and information about rare diseases.
National Headquarters: 55 Kenosia Avenue, Danbury, Connecticut 06810
NORD’s Patient Services: (800) 999-6673 or (844) 259-7178 in Spanish
rarediseases.org
Specializes in the diagnosis and management of children with physically disabling conditions. They provide a wide variety of services, including wheelchair and seating evaluations, prosthetic evaluations, rehabilitation services, electrodiagnostics and more.
700 Children’s Drive, Columbus, Ohio 43205
(614) 722-6200
nationwidechildrens.org/physical-medicine-rehabilitation
A volunteer led, nonprofit organization supporting the needs of individuals and families affected by Tourette Syndrome and Tic Disorders through public awareness and education, advocacy, resources and support.
42-40 Bell Boulevard, Bayside, New York 11361
(888) 486-8738
tourette.org