Special Needs / Autism
Central Institute for the Deaf
Central Institute for the Deaf is a fully accredited auditory-oral school where hearing-impaired children learn to listen, talk, read and succeed. They specialize in excellence in auditory-oral deaf education for children birth to 12. Generous private support makes CID affordable for families of children with hearing loss who qualify, regardless of ability to pay.
825 South Taylor Avenue
St. Louis, MO 63110
Phone: (314) 977-0132
Toll Free: 877-444-4574
www.cid.edu
Cerebral Palsy Sports Program
Coordinated by physical therapists at Children’s hospital, provides sports opportunities for children with CP.
Phone: 314-454-KIDS
or
1-800-678-KIDS
www.stlouischildrens.org
Children’s Legal Alliance – Legal Services of Eastern MO
Free legal assistance to income eligible children who have special education needs. Services include representing children at IEP meetings, due process, suspension or expulsion hearings. Other services include ensuring homeless children have access to education, advocating for access to appropriate special education services, correcting inaccurate or misleading school records.
4232 Forest Park Blvd
St. Louis, MO 63108
Phone: (314) 534-4200 ext. 1311
or
1-800-444-0514 ext. 1311
www.lsem.org
Delta Gamma
Early intervention services for children with visual impairment.
1750 S. Big Bend Blvd.
Richmond Heights, MO 63117
Phone: (314) 776-1300
www.dgckids.org
Down Syndrome Association of Greater St. Louis
Benefits the lives of people with Down Syndrome and their families through individual and family support, education, advocacy and public awareness.
8531 Page Avenue
St. Louis, MO 63114
Phone: (314) 961-2504
www.dsagsl.org
Easter Seals Disability Services
Services to adults and children with disabilities, including early intervention, play therapy, camping, respite care, leisure activities, child development, and family support.
Autism Services – St. Louis
10176 Corporate Square Drive, Suite 150
St. Louis, MO 63132
314-432-6200
www.eastersealsmidwest.org
Epilepsy Foundation of the St. Louis Region
Prevention, education, and advocacy services to people with seizures, their families, and the community. Includes employment, independent living, and social services.
Epilepsy Foundation Missouri & Kansas
2340 E Meyer Blvd Ste 300B Bldg 1
Kansas City Missouri 64132-2109
Phone: (314) 781-4949 or (800) 264-6970
Family Resource Center
Located on the 3rd floor of Children’s Hospital. Provides a wide array of literature focusing on resources devoted to children’s health and parenting.
Hours:
Mon-Thurs 8:30am-7pm
Fri 8:30am-4:30pm
Sat 10am-2pm
One Children’s Place
Room 3S-12
St. Louis, MO 63110
Phone: (314) 454-2350
www.stlouischildrens.org
First Steps
First Steps offers coordinated services and assistance to young children with special needs and their families. First Steps is designed for children, birth to age 3, who have delayed development or diagnosed conditions that are associated with developmental disabilities.
Families can contact their local First Steps office for more information by calling toll free: 866-583-2392
Office of Special Education
205 Jefferson Street
P.O. Box 480
Jefferson City, MO 65102-0480
Phone: (573) 751-5739
Fax: (573) 526-4404
E-mail: webreplyspefs@dese.mo.gov
First Steps
Phone
573-522-8762
sefirststeps@dese.mo.gov
Fragile X Resource Center of Missouri
Provides support and information to individuals with FXS and their families.
Genetics Home Reference
Website developed by the National Institue for Health to educate parents about the ways genetic variations affect health.
http://ghr.nlm.nih.gov/
AFA Academy (Formerly Howard Park Center)
ACTION FOR AUTISM (AFA) is a St. Louis-based 501(c)(3) charitable organization, founded in 2008, to address the growing need to assist children and their families with Autism Spectrum Disorders (ASD). AFA serves children and families who reside within a 250 mile radius of St. Louis. ACTION FOR AUTISM provides financial support to families, while also facilitating therapy and learning, as well as preparing children for a successful future, within its AFA Academy facilities, providing services for children through age 21.
AFA Academy-Steamboat
265 Steamboat Lane
Ballwin, MO 63011
636.227.2330 Phone
636.227.2331 Fax
info@afastl.org
AFA Academy-Pierside
16375 Pierside Lane
Wildwood, MO 63040
636.405.2701 Phone
636.422.1223 Fax
info@afastl.org
IEP (Individual Education Plan) pamphlet
Helpful guide on navigating the IEP process from start to finish, as well as problem solving tips for when problems arise.
Judevine Center for Autism
Services to people with autism, including therapy, residential care, education, family support.
1-800-780-6545
www.judevine.org
Kids Enjoy Exercise Now (KEEN)
Provides free one-to-one recreational opportunities for children and young adults with mental and physical disabilities.
8820 Ladue Road, Suite 203
St. Louis, MO 61324
Phone: (314) 259-5980
www.keenstlouis.org
Missouri Council of the Blind
A support group that provides information and support. Information provided includes scholarships, summer camps, special services program, adaptive technology information, health benefits, employment and legislation issues and public awareness programs.
5453 Chippewa
St. Louis, MO 63109
Phone: 314-832-7172
Toll-free: 800-342-5632
www.missouricounciloftheblind.org
Missouri Protection and Advocacy
A federally mandated statewide system which provides protection of the rights of persons with disabilities through legally based advocacy.
925 South Country Club Dr.
Jefferson City, MO 65109
Application Unit:
Phone: (573) 659-0678 or 1-800-392-8667
MO Relay (TDD):
Phone: 1-800-735-2966
www.moadvocacy.org
MPACT Parent Training and Information
A statewide parent training and information center serving all disabilities. MPACT’s mission is to ensure that all children with special needs receive an education that allows them to achieve their personal goals.
Phone: 1-800-743-7634
www.ptimpact.org
Paraquad
Information and referral service about resources for people with disabilities including:
* Accessible Housing Clearinghouse
* Financial assistance with home modifications, rental and mortgage payments,
* Employment program,
* Benefits planning assistance
* College for Living including continuing education, supported education, supported employment.
* DEAFWay Interpreting Services
* Deaf and Hard of Hearing Services – develop independent living plans
* Personal Assistance Services – people with disabilities hire, train and supervise their own personal attendants.
* Youth and Family Program
* Public Policy Advocacy Program
5240 Oakland Avenue
St. Louis, MO 63110
Phone: (314) 289-4200
TTY: (314) 289-4252
www.paraquad.org
Ranken Jordan
Provides care for children with complex medical and developmental needs regardless of ability to pay.
11365 Dorsett Road
Maryland Heights, MO 63043
Phone: (314) 872-6400
or
1-866-845-6400
www.rankenjordan.org
Recreation Council of greater STL
Clearinghouse for information on leisure, recreation and socialization opportunities for individuals with developmental disabilities who reside in the Greater St. Louis Area.
St. Louis City Office:
200 S. Hanley
Ste. 100
St. Louis, MO 63105
Phone: (314) 772-2299
St. Charles Office:
60 Gailwood Dr. Suite C.
St. Peters, MO 63376
Phone: (636) 477-7704
www.recreationcouncil.org
Rehabilitation Services for the Blind
Rehabilitation Services for the Blind (RSB) provides services to people with varying degrees of visual impairment, ranging from those who cannot read regular print to those who are totally blind.
St. Louis Arc
Support and services to adults and children with intellectual and developmental disabilities, and their families.
Belle Children’s Services of St. Louis Arc offers an inclusive Center-Based Preschool that allows children with disabilities opportunities to be included in a typical classroom. They also provide outreach services offering therapy for children in the community, parent education programs on topics like development or legal issues, and workshops that help support parents and siblings of children with disabilities.
1177 N. Warson
St. Louis, MO 63132
Phone: (314) 569-2211
www.slarc.org
www.slarc.org/site/441/belle_childrens_services.aspx
St. Louis Learning Disabilities Association (LDA)
Services for people with learning disablities and their families, including information, referral, community education, resource library, and individual consultation.
13537 Barrett Parkway Dr, Suite 110
Ballwin, MO 63021
Phone: (314) 966-3088
www.ldastl.org
St. Louis Regional Center
Service coordination for anyone with a developmental disability, such as mental retardation, cerebral palsy, head injuries, autism, epilepsy, certain learning disabilities.
St. Louis City Office:
111 N. 7th Street, 6th Floor Wainwright Bldg
St. Louis, MO 63101
Phone: (314) 244-8800
Toll Free: 1-800-358-7665
Social Security Office
A child might be eligible for 3 types of Social Security benefits-
* Social Security Dependents Benefits (SSDI)- for children of disabled or deceased parents.
* Supplemental Security Income (SSI)- benefits are payable to children under 18 years old who have disabilities and limited resources.
* Medicaid-automatic for patients with severe impairments regardless of parental income.
Phone: 1-800-772-1213
TTY: 1-800-325-0778
www.socialsecurity.gov/applyfordisability/child.htm
Special School District Resource Center
Knowledgeable staff and a wealth of information for families of children with disabilities.
12110 Clayton Rd.
Town and Country, MO 63131
Phone: (314) 989-8100
www.ssdmo.org/cool_tools/fcrc.html
Team Activities for Special Kids (T.A.S.K.)
T.A.S.K. provides year-round instructional sports program that provides athletic and social opportunities to kids with special needs. The purpose of the program is to help build self-esteem and skills in children with special needs.
980 Horan
Fenton, Missouri 63026
Phone: 636.343.TASK (8275)
WINGS
Seeks to enhance a childs quality of life during his or her last months, weeks or days, by offering pain and symptom management and comfort care.
Phone: (314) 872-5050
www.stlouischildrens.org/
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