Works with patients and healthcare providers to help improve access to genetic services for medically underserved populations and those with genetic conditions. Use the Find a Genetic Service page on their website to search for care providers by zip code. The Journey Through Diagnosis website and app provides a detailed guide for families on coping with emotions related to a genetic diagnosis, accessing medical care and support services, navigating insurance, and more.
Journey Through Diagnosis: journey.midwestgenetics.org
Organization Website: midwestgenetics.org/resources/for-families