Special Needs/Autism

Social Security Dept.

A child might be eligible for 3 types of Social security benefits-
Social Security Dependents Benefits (SSDI)- for children of disabled or deceased parents
Supplemental Security Income (SSI)- benefits are payable to children under 18 years old who have disabilities (an impairment that is as severe as one that would keep an adult from doing any ‘substantial work for at least one year’, i.e. a disability that limits the child’s ability to do things and behave in the way that children of similar age group do.), and limited resources.
Medical Assistance- government funded health program (Medical Assistance and Medicaid are the same thing)-automatic for patients with severe impairments regardless of parental income. – 800-772-1213
http://www.socialsecurity.gov

Health Intervention Program (HIP) for Children with Special Health Care Needs

HIP helps parents and caregivers cope with their special needs child’s day-to-day health problems by working with families in their own homes to help create a personalized care plan. Services are provided by a team that includes a nurse, social worker, parent-professional and counselor – Following are referral areas:

  • LaSalle Nursing Center (NW, North and lower NE Phila)- 1900 West Olney Ave- 215-951-5034
  • Congreso de Latinos Unidos  
Serving North and North Central Philadelphia
215-763-8870 ext. 190
  • Health Promotion Council
Serving South, West and Southwest, Center City and parts of North and Northeast Philadelphia
267-765-2307

www.phila.gov/health/mcfh/hipfamilies.html
HIP Brochure English
HIP Brochure Spanish

The Special Kids Network

A free, statewide service for families with children who have special needs. They will connect parents with resources and support services in their communities, including: advocacy; home health; legal rights; support groups; summer camps; therapies; medical equipment; MA questions; private schools and more- 800-986-4550
www.health.state.pa.us/skn

Children with Special Health Care Needs (CSHCN)

A division of the Phila. Dept. of Public Health; Maternal, Child&Family Health Division. This unit can help both families and professionals who are looking for help in navigating the sometimes complex systems that address the needs of CSHCN (birth-21) in the Philadelphia area- call 215-685-5232
www.phila.gov/health/mcfh/specialNeeds.html

United Cerebral Palsy of Philadelphia (UCPA)

This is a multi-service agency for children and adults with cerebral palsy and developmental disabilities. They offer home and center-based programs, advocacy, referral and information about resources for children with special needs- 102 E. Mermaid Lane- 215-242-4200
www.ucpphila.org

Easter Seals

Dozens of Programs throughout Philadelphia and SE PA for children with Special Health Care Needs. Call 215-879-1000 or go to website for info.
http://sepa.easterseals.com

Parent to Parent of Pennsylvania

Links families and friends of children with special needs, provides technical assistance, training- 888-727-2706
www.parenttoparent.org

Parent Education Network

Offers parents information about federal and state laws and regulations regarding early intervention and special education for children with special needs- 800-522-5827- En Espanol 800-441-5028.
www.parentednet.org

Parents Involved Network of PA

Assists parents of children who have emotional or behavioral disorders, are receiving mental health system services, or are receiving special education services- advocates for these children, and provides information- 1211 Chestnut St.- 215-751-1800.
http://www.mhasp.org/services/parents-involved-network-pin-philadelphia-county.html

Philadelphia Dept. of Education Special Ed. Consult Line

Main phone number for most issues relating to Philadelphia school system- 800-879-2301

Office of Specialized Services of the School District of Phila.

The Office of Specialized Services (OSS) is committed to the educational, social, physical, and emotional well being of students within the School District of Philadelphia. The OSS provides comprehensive special education, behavioral health, school health, and prevention/intervention programs. 215-400-4170
http://webgui.phila.k12.pa.us/offices/s/oss

Special Education Guide

The go-to resource for mastering the terminology, procedures and best practices in special education.
Click here for link to guide

CONNECT Early Intervention Hotline

Information and referral services to parents of children with disabilities who are less then 3 years old- 800-692-7288

COMHAR (Community Organization of Mental Health and Retardation)

Helps people of all ages and cultures in the community who have developmental disabilities, mental health concerns, physical limitations and other challenges- Children’s Service at 3825 Whitaker Ave- 215-427-5756
www.comhar.org

Variety Philadelphia

Variety Philadelphia has several programs for children with special needs and autism including: after school programs and camps; autism resources; and medical equiptment. 100 N 18th Street, Suite 300 Call 215-735-0803 for info
www.varietyphila.org

Vision for Equality

Mission is to assist and empower people with disabilities and their families to seek quality and satisfaction in their lives as well as equal access to supports and services. 718 Arch Street. Call 215-923-3349.

www.visionforequality.org

HUNE (Hispanos Unidos Para Ninos Excepcionales)

HUNE provides free bilingual English and Spanish training, technical assistance and individual assistance to parents of infants, toddlers, children, and youth with disabilities and to professionals who work with children. 2215 N American Street Call 215-425-6203.
huneinc.org

PA Assistive Technology Foundation

The Pennsylvania Assistive Technology Foundation (PATF) is a non-profit organization that provides low-interest loans to people with disabilities and older adults so that they can buy the assistive technology devices and services they need. Call 484-674-0506.
http://www.patf.us/

Assistive Technology Resources

See links below for info on assistive telecommunications (free phones and other technology) for eligible persons. Click here for Telecommunication Device Distribution Program (TDDP) or PA’s Initiative on Assistive Technology

PA Elks Home Service Program

Consultation with Special Needs program to assist with: home care and equiptment; finding adaptive clothing and toys; and getting advise on educational and treatment issues. Call 814-781-7860.
www.paelks.com/files/Homeserv.htm

PA Medical Home

Information for parents and health care professionals who take care of children with special health care needs.
www.pamedicalhome.org

The ARC of Philadelphia

Dedicated to ensuring that each person with intellectual disability will reach his/her potential and exercise his/her right to choose where and how to live- 2350 W. Westmoreland St.- 215-229-4550
www.arcpddc.org

Office of Vocational Rehabilitation (OVR)

State agency that helps people with disabilities help themselves to prepare for, start, and maintain a career- 444 N. Third Street- 215-560-1900

● Special Needs Daycare ●

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Frankie’s World Day Care

Frankie’s World is a daycare for children with special healthcare needs. We provide skilled nursing care, OT, PT, and speech therapy for children that qualify ages infants through 8 years. Transportation is also provided for children that require it. 1011 Poplar Street. Call 215-763-0151.
www.frankiesworlddaycare.com

Lauren’s House

Lauren’s House is a loving, caring Center for Special Needs Children.
Lauren’s House is a licensed Prescribed Pediatric Extended Care Center (PPECC) by the Commonwealth of Pennsylvania. 3 locations: North Philly 888-340-9430; Coatsville 877-589-0854; and Boothwyn, Delaware County 888-340-9420. Lauren’s House is a brand new state of the art center, operated by professional personnel with years of pediatric experience. Call 888-340-9420.
www.laurenshouse.com

Pediatria Healthcare for Kids

Pediatria Healthcare for Kids Private Duty Nursing provides RN, LPN and Home Health Aide services to families with special needs children as ordered. We provide such services up to 24 hours a day, and up to 7 days a week. We can also provide skilled nursing visits for teaching, home and health assessments and iv infusions.
Pediatria Healthcare for Kids Day Health program is a day health center for special needs children from birth to age 8. Bus transportation is provided. Hours of operation are 6:30AM – 6:30PM, Monday through Friday. We set ourselves apart from others with our age appropriate classrooms, therapy gym, and both indoor/outdoor play areas. Meals are provided. Call 215-376-6801 for info. 8101 Washington Lane Wyncote, PA 19095

www.pediatriakids.com

Ventilator Assisted Children’s Home Program

The Ventilator Assisted Children’s Home Program promotes high quality, cost-effective care of the ventilator assisted child in the home and supports the family in coping with this extraordinary endeavor. Call 1-267-425-9408 for info.
www.kidshome-vent.org/

● Dental Care ●

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Elwyn Dental Clinic

Dental clinic for children with special health care needs. State of the art full service dental facility with full accessibility. 4040 Market Street. Call 215-895-5533 for appointments.
http://www.elwyn.org

Special Smiles Ltd.

Denatl care for children with special needs. 100 E. Lehigh Ave., Centennial Two 215-707-0575
www.specialsmilesltd.com

Dental Handouts for Kids with Special Health Care Needs

Click link below and choose category for handout.
http://dental.washington.edu/departments/omed/decod/special_needs_facts.php

● Legal Resources ●

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Legal Clinic for the Disabled Children’s Health Initiative

Helping low-income families of children with disabilites resolve health care coverage issues. Provides FREE legal services on a variety of issues, including the Medical Assistance grievance process. Call 215-587-3350.
www.legalclinicforthedisabled.org

Disabilities Rights Network of PA

Hotline to answer most questions concerning: special education, health, early intervention and the rights of a child or adult with special needs. Call 1-800-692-7443 for info.
www.drnpa.org/

Education Law Center

Promoting fairness and quality education in the public school system, and helping families understand and enforce their legal rights, from prompt early intervention services, children whose native language is not English, and children with disabilities- 1315 Walnut Street, 4 th Floor – 215-238-6970
www.elc-pa.org

● Transportation ●

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Logisticare Medical Transportation

Logisticare provides transportation services for children with special health care needs or ANY child who recieves medical assistance and Medicaid. Call at least 3 days in advance and up to 30 days in advance to schedule a pick-up- 877-835-7412.
www.logisticare.com

● Miscellaneous ●

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CHOP Transition Support Programs

CHOP’s “REACH” programs are designed to help families, and young adults with disabilities, learn how to transition to adulthood. REACH’s mission is to prepare youth 14 to 24, with special healthcare needs, for a successful transition into adulthood by providing peer support, guidance and resources. Click here for info or call 215-590-7444.

CHADD (Children and Adults with ADD)

The nation’s leading non-profit organization for children and adults affected by ADD/ADHD-800-233-4050
www.chadd.org

Kelly Anne Dolan Memorial Fund

The Kelly Anne Dolan Memorial Fund is a non-medical resource center that provides advocacy, education, information, and financial assistance for needs not covered by insurance to families caring for terminally, critically, and chronically ill, severely disabled, or seriously injured children. Call 215-643-0763 for info.
www.dolanfund.org

Sunshine Foundation

Sunshine Foundation’s sole purpose is to answer the dreams of chronically ill, seriously ill, physically challenged and abused children ages three to eighteen, whose families cannot fulfill their requests due to financial strain that the child’s illness may cause. Call 215-396-4770 for info or go to website below.
http://www.sunshinefoundation.org/index.html

Special Olympics of Philadelphia

Many sports for children with special needs. 2900 Southhampton Road. Call 215-671-5069 for info.
www.specialolympicspa.org/

Katie’s Komets

Sports programs for children with disabilities. Go to website for more info.
http://katieskomets.org/

National Center for Learning Disabilities

Call 888-575-7373 for info
www.ncld.org/

National Down Syndrome Society

800-221-4602
Click here for local support group
www.ndss.org

Trisomy 21 (Down Syndrome) Program at CHOP

This program assesses the developmental, behavioral and health needs of children and adults with Down Syndrome. Also, they can coordinate community resources for families affected by Down as well as referral to parent support groups. Call 267-426-5283.
www.chop.edu

● Autism Resources ●

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The Center for Autism

Specialized intensive training for autistic children- 3905 Ford Road, Suite 6, Philadelphia PA 19131
215-878-3400
www.thecenterforautism.org
Brochure

The Autism Society of America

The Autism Society of America, Greater Philadelphia Chapter was established in 1977 by a dedicated group of parents with a strong desire to band together and be a united voice to represent individuals with Autism Spectrum Disorders and spread awareness.
Click this link for safety toolkit
http://www.asaphilly.org/

Autism Centers of Excellence (ACE) in Philadelphia

For autism evaluations and enrollment in various autism research programs.
SW Philly-Child Guidance Resource Center 2901 Island Avenue 215-590-0413
Center City-NE Treatment Center 499 Spring Garden Street 855-ASD-PACE
NE Philly-SPIN 10541 Drummond Road 215-612-7625

The Center for Autism Research (CAR)

The CAR at CHOP/UPenn is looking for the causes of autism spectrum disorders and is developing new treatments for children and adults with autism. We study infants who have a brother or sister already diagnosed with autism. We also have research studies for toddlers, school-aged children, and adults. Families who take part in our research studies receive evaluation reports and are paid for their time and travel costs. Call 1-866-570-6524.
http://research.chop.edu/car

Autism Speaks

Advocacy group dedicated to increasing awareness of autism spectrum disorders; and advocating for the needs of individuals with autism and their families. Website includes many resources for families.
http://www.autismspeaks.org

ASERT (Autism Services, Education, Resources, and Training) Collaborative

ASERT is a statewide initiative funded by the Bureau of Autism Services, PA Department of Public Welfare. The ASERT Collaborative is a partnership of medical centers, centers of autism research and services, universities and other providers of services involved in the treatment and care of individuals of all ages with autism and their families. The ASERT Collaborative has been designed to bring together resources locally, regionally, and statewide.
 877-231-4244 (Monday-Friday 8AM-5PM)
PaAutism.org

Understanding Autism Videos-Asian Families

Click here for video to help Asian families with understanding developmental delays and autism. In Japanese, Nepoli, Indonesian, Chinese and English.

Autism Checklist for Toddlers (MCAT)

Click here >> for checklist m-chat  and here for scoring m-chat_scoring

Elwyn Autism/Special Needs Resource Guide

Click here for complete Specal Needs/Autism Guide
Quick List of Autism Resources