Non-profit granting wishes for children ages 0-20 with a life-threatening or terminal illness who have not had a wish granted by another wish-granting organization. Anyone can refer a child by completing the form on their website. Call the organization for additional details.
Serves: Children, teens, individuals, and families with ID/DD and/or behavioral health challenges.
Provides person-centered care to people with intellectual and developmental disabilities and behavioral health challenges. They offer primary care, dental, psychiatry, outpatient behavioral health, community-based ABA, care coordination, long-term and temporary residential support, in-home and out-of-home respite services, day programs, and afterschool programs. Family Support Services are provided by the State of Ohio for families who need help keeping their loved one at home. Services vary by location, find details and request an appointment on their website.
(800) 409-2729
iamboundless.org
Nonprofit started by parents caring for children with Spina Bifida, COSBA offers support to new families, organized social gatherings, and helps with related financial needs. Visit the website for contact information.
centralohiospinabifidaalliance.blogspot.com
Provides resources, tools, and trainings to help individuals and families of individuals with developmental disabilities. Their website has database of programs and organizations across Ohio for helpful products, therapy, schools, legal help, clinical trials, and more. They use Charting the LifeCourse principals to help individuals and families of all abilities and ages develop a vision for a good life, and regular LifeCourse trainings are available for families and professionals.
The Ohio State University Nisonger Center
1581 Dodd Drive, Columbus, Ohio 43210
Family Resource Coordinator: (614) 293-2134
Family Support Coordinator: (513) 636-4723
frnohio.org
Provides free adaptive bikes to children and young adults with conditions like Spina Bifida, Cerebral Palsy, Down Syndrome, Hydrocephalus, Autism, and more. Families may contact the organization directly to start the application process, which includes an application, interview, and letter from the family’s therapist. Wait times vary by state.
8305 Tom Drive, Baton Rouge, Louisiana 70815
(225) 456-3505
mclindonfamilyfoundation.org
Provides non-emergency, long-distance ground transportation for patients traveling for treatment. Patients must be ambulatory and meet income guidelines. Patients may receive gas cards, bus, train, or airline tickets. Trips within a local area or community is typically not handled, but exceptions may be made on a case-by-case basis. Visit the website for contact information.
101 West Main Street, Norfolk, Virginia 23510
mercymedical.org
Provides individualized treatment for children, adolescents, and young adults with physical disabilities. Services include injury evaluation, rehabilitation, and adaptive athletic training.
Dublin Sports Medicine and Orthopedic Center
5680 Venture Drive, Dublin, Ohio 43017
(614) 355-6000
nationwidechildrens.org/adaptive-sports-medicine-program
Provides a full range of homecare services to Central Ohio children of all ages, from newborns through young adults. Homecare offers the following areas of service:
255 East Main Street, Columbus, Ohio 43215
(614) 355-1100
nationwidechildrens.org/homecare
Provides developmental occupational therapy (OT), speech and language therapy, and physical therapy (PT) services. Services are provided at the main hospital and at many clinic locations throughout the community, for children from birth to age 21.
700 Children’s Drive, Columbus, Ohio 43205
(614) 722-2200
Occupational Therapy: nationwidechildrens.org/specialties/occupational-therapy
Speech Pathology: nationwidechildrens.org/specialties/speech-pathology
Physical Therapy: nationwidechildrens.org/specialties/physical-therapy
Specializes in the diagnosis and management of children with physically disabling conditions. Services include wheelchair and seating evaluations, prosthetic evaluations, spasticity management, electrodiagnosis, and more.
700 Children’s Drive, Columbus, Ohio 43205
Cerebral Palsy Clinic: (614) 722-5136
Myelomeningocele Clinic: (614) 722-5775
Botox, Concussion, Electrodiagnostic, Physical Medicine, and Seating Clinics: (614) 722-5050
nationwidechildrens.org/physical-medicine-rehabilitation
Provides comprehensive, long-term treatment services to children with spinal abnormalities. Children may be served by a variety of specialists, including Developmental Pediatrics, Neuropsychology, Genetics, Occupational Therapy, Social Work, and more.
555 South Eighteenth Street, Columbus, Ohio 43205
(614) 722-5725
nationwidechildrens.org/myelomeningocele-spina-bifida-clinic
The Department of Developmental Disabilities is a statewide system of supports and services for people with developmental disabilities, and their families. Each county in Ohio has its own Board of Developmental Disabilities, which is the place to start for determining eligibility, assessing your needs, and coordinating which services can best support you. Their offices can help you with early intervention programs, healthcare services, waivers and scholarships, job training and employment, unusual incident reporting, and more.
Provides care for children, adolescents, and adults with cerebral palsy, muscular dystrophy, spina bifida, spinal cord injury, and other neuromuscular disabilities at multiple locations through Cincinnati Children’s Hospital. Services include case management, occupational therapy, speech therapy, and early childhood integrated therapies. They also provide comprehensive assistive technology evaluations for all ages.
(513) 636-4601
3333 Burnet Avenue, Cincinnati, Ohio 45229
5642 Hamilton Avenue, Cincinnati, Ohio 45224
9560 Children’s Drive, Mason, Ohio 45040
cincinnatichildrens.org/service/a/aaron-perlman-center
Promotes independence and inclusion for people with cerebral palsy, intellectual, developmental, and other disabilities. Their website has tons of helpful Resources including a Guide to Homebuying for people with disabilities, disability etiquette, healthcare resources, and more. UCP of Greater Cleveland offers a Mobility Clinic for Assistive Technology assessment and equipment fitting. They also offer therapy and education services for children, and adult day services.
UCP National Office: 8401 Old Courthouse Road, Vienna, Virginia 22182
(800) 872-5827
ucp.org
UCP Greater Cleveland: 10011 Euclid Avenue, Cleveland, Ohio 44106
(216) 791-8363
ucpcleveland.org
Provides medical grants for families to pay for healthcare services related to a major medical condition that are not covered by their family’s insurance plan. Children must be 16 years old or younger, be a U.S. citizen, and have coverage through a commercial health plan to qualify for a grant. Families must meet income eligibility requirements. Applications must be submitted on a computer, not phone or tablet. Visit the website for a full list of requirements and for application instructions.
(855) 698-4223
uhccf.org