Columbus OH
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Epilepsy, Seizures & Neurologic Disorders

Team IMPACT

A free program for children with serious medical conditions and disabilities ages 5-16. Children are paired with sports teams at colleges and universities across the state of Ohio with the goal of creating meaningful, long-lasting relationships with student athletes. Kids experience positive social-emotional development and a sense of belonging through inclusion, support and team engagement. Go online to find a participating team near you and apply.
National Office: 500 Victory Road, Quincy, Massachusetts 02171
(317) 709-7658
teamimpact.org

Mercy Medical Angels

A non-profit providing non-emergency, long-distance ground transportation for patients traveling for treatment. Patients must be ambulatory and meet income guidelines. Patients may receive gas cards, bus, train, or airline tickets. Trips within a local area or community is typically not handled, but exceptions may be made on a case-by-case basis. Visit the website for contact information.
101 West Main Street, Norfolk, Virginia 23510
mercymedical.org

Family Resource Network of Ohio (FRNO)

Provides resources, tools, and trainings to help individuals and families of individuals with developmental disabilities. Their website has database of programs and organizations across Ohio for helpful products, therapy, schools, legal help, clinical trials, and more. They use Charting the LifeCourse principals to help individuals and families of all abilities and ages develop a vision for a good life, and regular LifeCourse trainings are available for families and professionals.
The Ohio State University Nisonger Center
1581 Dodd Drive, Columbus, Ohio 43210
Family Resource Coordinator: (614) 293-2134
Family Support Coordinator: (513) 636-4723
frnohio.org

Ability Matters

Serves: Students ages 3-21, individuals, and families. 
Agency providing services for individuals with autism and other neurological disabilities. Services include intervention training and support, customized and individualized learning options through the Ohio Autism Scholarship Program, and independent supportive living. The Beyond Ability Matters program provides housing, educational experiences like preparing for a job interview, and community outings. Services are offered by trained and experienced care providers.
425 Metro Place North, Dublin, Ohio 43017
(614) 956-1229
abilitymattersohio.com
Beyond Ability Matters: beyondabilitymatters.com

Ohio Department of Medicaid Waiver Services

Waivers are programs that help Ohio Medicaid customers with special needs remain at home instead of being in a nursing home, hospital, or facility. They provide financial assistance to families, and there is typically a waiting list. Services may include personal care, transportation, respite services, supported employment, nutrition services, assistive devices, home modifications and interpreter services. See further information about Ohio waiver programs below.

50 West Town Street, Columbus, Ohio 43215
Consumer Hotline: (800) 324-8680
medicaid.ohio.gov

Ohio Departments and County Boards of Developmental Disabilities

The Department of Developmental Disabilities is a statewide system of supports and services for people with developmental disabilities, and their families. Each county in Ohio has its own Board of Developmental Disabilities, which is the place to start for determining eligibility, assessing your needs, and coordinating which services can best support you. Their offices can help you with early intervention programs, healthcare services, waivers and scholarships, job training and employment, unusual incident reporting, and more.

  • Ohio Department of Developmental Disabilities: dodd.ohio.gov
    30 East Broad Street, Columbus, Ohio 43215
    (800) 617-6733
  • Delaware County: dcbdd.org
    7991 Columbus Pike, Lewis Center, Ohio 43035
    (800) 474-9787 or (740) 201-3600
  • Franklin County: fcbdd.org
    2879 Johnstown Road, Columbus, Ohio 43219
    (614) 475-6440
    24-hour Emergency: (614) 464-2743
    FCBDD Location Directory: fcbdd.org/about-us/directory
  • Ohio Association of County Board of Developmental Disabilities: oacbdd.org/index.php
    Represents the county boards throughout Ohio, monitors legislation at the state and national level. Their website lists helpful advocacy information for individuals, families, and professionals.
    73 East Wilson Bridge Road, Worthington, Ohio 43085
    (614) 431-0616
  • Find Your County Board of DD: dodd.ohio.gov/your-family/all-family-resources/4-find-your-county-board

Nationwide Children’s Hospital (NCH) Occupational, Speech & Physical Therapy Programs

Provides developmental occupational therapy (OT), speech and language therapy, and physical therapy (PT) services. Services are provided at the main hospital and at many clinic locations throughout the community, for children from birth to age 21.
700 Children’s Drive, Columbus, Ohio 43205
(614) 722-2200
Occupational Therapy: nationwidechildrens.org/specialties/occupational-therapy
Speech Pathology: nationwidechildrens.org/specialties/speech-pathology
Physical Therapy: nationwidechildrens.org/specialties/physical-therapy

Center for Courageous Kids (CCK)

Offers free summer camps and family retreat experiences for seriously ill children, in a safe, medically supervised environment. Medical care is provided by volunteer physicians and nurses coordinated by a full-time medical director. They provide camps for kids with asthma, cancer, cerebral palsy, diabetes, blood disorders, muscular dystrophy, sickle cell, spina bifida and more.
1501 Burnley Road, Scottsville, Kentucky 42164
(270) 618-2900
courageouskids.org

Epilepsy Alliance Ohio

Serve those living with epilepsy and seizures, as well as their families and caregivers. They offer counseling services, art therapy, scholarships, summer camps, residential group homes, virtual and in-person support groups, referrals to community resources, community education, and more. Their website also has helpful information about understanding epilepsy and joining clinical trials.

  • Cincinnati: 895 Central Avenue, Cincinnati, Ohio 45202
    (877) 804-2241
  • Columbus: 3857 North High Street, Columbus, Ohio 43214
    (614) 725-1015
    Art Therapy: (614) 725-1031

epilepsy-ohio.org

Epilepsy Foundation

Provides in-depth information and resources for people living with epilepsy. The Epilepsy & Seizure Hotline is also offered 24-hours for information and referrals to support. They have free, online courses for individuals and professionals on topics like Seizure Safety and Navigating the Workplace with Epilepsy. You can also find information on help paying for prescriptions, clinical trials and research, camps and family programming, support groups, and more.
3540 Crain Highway, Bowie, Maryland 20716
Technical Support: (800) 332-1000
24/7 Epilepsy & Seizures Helpline: (800) 332-1000 or (866) 748-8008 for Español
epilepsy.com

Epilepsy Legal Defense Fund

Legal Defense Fund through the Epilepsy Foundation, to help end epilepsy-related discrimination. Their Attorney Network is made of experience attorneys who have agreed to provide some level of free legal services. They can help with cases related to employment, education, public accommodations, police and first responder services, housing, healthcare, and criminal justice. Go online to complete an Application for Assistance.
(800) 332-1000
epilepsy.com/living-epilepsy/legal-help
Application for Assistance: epilepsy.com/forms/application

Boundless

Serves: Children, teens, individuals, and families with ID/DD and/or behavioral health challenges.
Provides person-centered care to people with intellectual and developmental disabilities and behavioral health challenges. They offer primary care, dental, psychiatry, outpatient behavioral health, community-based ABA, care coordination, long-term and temporary residential support, in-home and out-of-home respite services, day programs, and afterschool programs. Family Support Services are provided by the State of Ohio for families who need help keeping their loved one at home. Services vary by location, find details and request an appointment on their website.

  • Worthington Campus and Administrative Office:
    445 East Dublin-Granville Road, Worthington, Ohio 43085
    (614) 844-3800
  • Newark:
    22 North First Street, Newark, Ohio 43055
    (740) 334-4056
  • West Carrollton:
    700 Liberty Lane, West Carrollton, Ohio 45449
    (937) 247-2400
    Center-Based ABA: (937) 672-1587
  • Mahoning Valley Campus of Care:
    1960 East County Line Road, Mineral Ridge, Ohio 44440
    (330) 596-1042
  • Medina:
    1065 Medina Road, Medina, Ohio 44256
    (330) 596-1042
  • Perrysburg:
    28555 Starbright Boulevard, Perrysburg, Ohio 43551
    (567) 312-4722

(800) 409-2729
iamboundless.org

JAN (Job Accommodation Network)

Offers free guidance on workplace accommodations and disability employment issues. JAN consultants offer one-on-one guidance on workplace accommodations, ADA and related legislation, and self-employment and entrepreneurship options for people with disabilities. Assistance is available both over the phone and online. Their website also has helpful information on a wide range of medical conditions with related resources and accommodations.
Voice: (800) 526-7234
TTY: (877) 781-9403
Text: (304) 216-8189
askjan.org

Medical Home Portal

This website is for professionals and families who care for youth with special healthcare needs. It has lots of valuable knowledge for families and professionals about all aspects of care from understanding diagnoses, to accessing legal, education, and healthcare services, and best practices for clinicians. The portal also has a National Services directory to help find services near you.
Parent & Family Portal: medicalhomeportal.org/living-with-child
Physicians & Professionals Portal: medicalhomeportal.org/clinical-practice

Mid-Ohio Board for an Independent Living Environment (MOBILE)

Helps veterans and people with disabilities find information, support, and referrals for disability-related services. They also provide adaptive equipment loans, peer support groups, living skills classes and transition services.
1829 East Long Street, Columbus, Ohio 43203
(614) 443-5936
mobileonline.org

Muscular Dystrophy Association (MDA)

Health organization serving people living with muscular dystrophy, ALS, and related neuromuscular diseases. The website has great information on various diseases and treatments, a searchable directory to find care providers across the country, resources on research and joining a clinical study, and community education materials. They host an annual summer camp for kids and young adults with neuromuscular disease at no cost to families, with in-person and virtual options. Families can call the Resource Center for one-to-one support and help finding resources.
1016 West Jackson Boulevard, Chicago, Illinois 60607
Corporate Office: (800) 572 1717
Resource Center: (833) 275-6321
mda.org

Nationwide Children’s Hospital (NCH) Adaptive Sports Medicine Program

Provides individualized treatment for children, adolescents, and young adults with physical disabilities. Services include injury evaluation, rehabilitation, and adaptive athletic training.
Dublin Sports Medicine and Orthopedic Center
5680 Venture Drive, Dublin, Ohio 43017
(614) 355-6000
nationwidechildrens.org/adaptive-sports-medicine-program

Nationwide Children’s Hospital (NCH) Epilepsy Center

Level-4 Epilepsy Program providing comprehensive pediatric epilepsy care. Provides neurodiagnostic evaluations and monitoring, and extensive medical, neuropsychological and psychosocial treatment for children and adolescents with epilepsy.
700 Children’s Drive, Columbus, Ohio 43205
(614) 722-4625 or (614) 722-6200
nationwidechildrens.org/epilepsy-center

Nationwide Children’s Hospital (NCH) Physical Medicine & Rehabilitation (PM&R)

Specializes in the diagnosis and management of children with physically disabling conditions. They provide a wide variety of services, including wheelchair and seating evaluations, prosthetic evaluations, rehabilitation services, electrodiagnosis and more.
700 Children’s Drive, Columbus, Ohio 43205
(614) 722-6200
nationwidechildrens.org/physical-medicine-rehabilitation

Tourette Association of America

Nonprofit working to raise awareness, advance research, and provide support to patients and families impacted by Tourette Syndrome and Tic Disorders. Find health information for kids, families, and professionals, toolkits on topics like bullying and transition to adult care, online events, and information on research and clinical trials. They also have online support groups for parents, teens, LGBTQ+, and Spanish-speaking community members.
42-40 Bell Boulevard, Bayside, New York 11361
(888) 486-8738
tourette.org


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