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Down Syndrome Resources

Family Resource Network of Ohio (FRNO)

Provides resources, tools, and trainings to help individuals and families of individuals with developmental disabilities. Their website has database of programs and organizations across Ohio for helpful products, therapy, schools, legal help, clinical trials, and more. They use Charting the LifeCourse principals to help individuals and families of all abilities and ages develop a vision for a good life, and regular LifeCourse trainings are available for families and professionals.
The Ohio State University Nisonger Center
1581 Dodd Drive, Columbus, Ohio 43210
Family Resource Coordinator: (614) 293-2134
Family Support Coordinator: (513) 636-4723
frnohio.org

Ability Matters

Serves: Students ages 3-21, individuals, and families. 
Agency providing services for individuals with autism and other neurological disabilities. Services include ABA, intervention training and support, customized and individualized learning options through the Ohio Autism Scholarship Program, and independent supportive living. The Beyond Ability Matters program provides housing, educational experiences like preparing for a job interview, and community outings. Services are offered by trained and experienced care providers.
425 Metro Place North, Dublin, Ohio 43017
(614) 956-1229
abilitymattersohio.com
Beyond Ability Matters: beyondabilitymatters.com

Buddy Up For Life for Youth with Down Syndrome

Serves individuals with Down Syndrome by providing engaging activities that help athletic, social, and emotional development. Athletes are partnered with volunteer Buddies to provide support, develop friendships, and reinforce the coaches’ instructions. Coaches are trained to implement the curriculum specifically created for athletes with Down Syndrome. Programs include tennis, pickleball, fitness, Zumba, and summer camp. The Columbus location offers a Life Skills program for students ages 14+ to learn skills like cooking, finance, and professional communication.
8000 Walton Parkway, New Albany, Ohio 43054
(614) 579-8808
buddyupforlife.org

Childhood League Center

Serves: Families with children under the age of 6, children with autism or developmental delays
Early childhood educational services for children including early childhood intervention, toddler classes, and home visits. Their preschool program serves a 50:50 ratio of children both with and without developmental delays, a research-based approach aimed at creating inclusive communities. The PLAY Project is an evidence-based, parent-implemented autism intervention for young children. The center also has educational resources for families, training opportunities for professionals, and community events. Find program and enrollment details online.
674 Cleveland Avenue, Columbus, Ohio 43215
(614) 253-6933
childhoodleague.org

Down Syndrome Achieves (DSA)

Focuses on research and funding, political advocacy and education to reduce health complications for people living with Down Syndrome. They also offer resources for parents who have a child with Down Syndrome. Visit the website or their Facebook page to receive DSA updates and news.
PO Box 1596, Dublin, Ohio 43017
(614) 362-3441
dsachieves.org
facebook.com/DSachieves

Down Syndrome Association of Central Ohio (DSACO)

Offers resources, information, programs and services for families with Down Syndrome in Central Ohio. They have several support groups for parents, counseling services, and a financial assistance program. They have regular events for all ages, such as play groups, arts and recreation, and virtual cooking classes for people with Down Syndrome. You can also request a hospital care package or new parent package for a family through their website.
510 East North Broadway, Columbus, Ohio 43214
(614) 263-6020
dsaco.net

Easterseals Central & Southeast Ohio

Serves: children and adults with developmental disabilities
Provides comprehensive health services for children and adults living with disabilities. Services include early childhood education, adult day services, in-home care, referral services, and outpatient therapies. They also offer afterschool programs and summer day camps for children.

  • Central and Southeast Ohio: 3830 Trueman Court, Hilliard, Ohio 43026
    (614) 228-5523
  • Cuyahoga Falls: 1212 Portage Trail Cuyahoga Falls, Ohio 44223
    (234) 417-0250
  • Chillicothe: 1855 Western Avenue, Chillicothe, Ohio 45601
    (740)773-1273
  • Lawrence County: 97 Private Road Eighty South Point, Ohio 45680
    (740) 894-7560
  • Medina: 5041 Victor Drive, Medina, Ohio 44256
    (330) 722-8558
  • Portsmouth: 3858 US Highway 23, Portsmouth, Ohio 45662
    (740) 716-7295

easterseals.com/centralohio

I Am Boundless

Serves: Children, teens, individuals, and families with ID/DD and/or behavioral health challenges.
Provides person-centered care to people with intellectual and developmental disabilities and behavioral health challenges. They offer primary care, dental, psychiatry, applied behavior analysis (ABA) and outpatient behavior health services, care coordination, long-term and temporary residential support, in-home and out-of-home respite services, day programs, and afterschool programs. Family Support Services are provided by the State of Ohio for families who need help keeping their loved one at home. Services vary by location, find details and request an appointment on their website.

  • Worthington Campus and Administrative Office:
    445 East Dublin-Granville Road, Worthington, Ohio 43085
    (614) 844-3800
  • Newark:
    22 North First Street, Newark, Ohio 43055
    (740) 334-4056
  • West Carrollton:
    700 Liberty Lane, West Carrollton, Ohio 45449
    (937) 247-2400
    Center-Based ABA: (937) 672-1587
  • Mahoning Valley Campus of Care:
    1960 East County Line Road, Mineral Ridge, Ohio 44440
    (330) 596-1042
  • Medina:
    1065 Medina Road, Medina, Ohio 44256
    (330) 596-1042
  • Perrysburg:
    28555 Starbright Boulevard, Perrysburg, Ohio 43551
    (567) 312-4722

(800) 409-2729
iamboundless.org

JAN (Job Accommodation Network)

Offers free guidance on workplace accommodations and disability employment issues. JAN consultants offer one-on-one guidance on workplace accommodations, ADA and related legislation, and self-employment and entrepreneurship options for people with disabilities. Assistance is available both over the phone and online. Their website also has helpful information on a wide range of medical conditions with related resources and accommodations.
Voice: (800) 526-7234
TTY: (877) 781-9403
Text: (304) 216-8189
askjan.org

Medical Home Portal

This website is for professionals and families who care for youth with special healthcare needs. It has lots of valuable knowledge for families and professionals about all aspects of care from understanding diagnoses, to accessing legal, education, and healthcare services, and best practices for clinicians. The portal also has a National Services directory to help find services near you.
Parent & Family Portal: medicalhomeportal.org/living-with-child
Physicians & Professionals Portal: medicalhomeportal.org/clinical-practice

Mid-Ohio Board for an Independent Living Environment (MOBILE)

Helps veterans and people with disabilities find information, support, and referrals for disability-related services. They also provide adaptive equipment loans, peer support groups, living skills classes and transition services.
1829 East Long Street, Columbus, Ohio 43203
(614) 443-5936
mobileonline.org

National Down Syndrome Congress (NDSC)

Offers information for new parents and professionals, speech and language resources, health care information, education, behavior tips and more.
30 Mansell Court, Roswell, Georgia 30076
(800) 232-6372
ndsccenter.org

National Down Syndrome Society (NDSS)

Their website provides lots of great resources and information about Down syndrome throughout the lifespan. They offer regular webinars and family programs, multiple scholarships, and more.
1155 Fifteenth Street Northwest, Washington D.C. 20005
(800) 221-4602
ndss.org

Nationwide Children’s Hospital (NCH) Adaptive Sports Medicine Program

Provides individualized treatment for children, adolescents, and young adults with physical disabilities. Services include injury evaluation, rehabilitation, and adaptive athletic training.
Dublin Sports Medicine and Orthopedic Center
5680 Venture Drive, Dublin, Ohio 43017
(614) 355-6000
nationwidechildrens.org/adaptive-sports-medicine-program

Nationwide Children’s Hospital (NCH) Down Syndrome Clinic

Provides diagnostic and treatment services to children and adolescents with Down syndrome and their families. Families are linked with medical, educational, social and financial supports in their communities to help meet the unique needs of their child.
700 Children’s Drive, Columbus, Ohio 43205
(614) 722-4050
nationwidechildrens.org/down-syndrome

Nationwide Children’s Hospital (NCH) Occupational, Speech & Physical Therapy Programs

Provides developmental occupational therapy (OT), speech and language therapy, and physical therapy (PT) services. Services are provided at the main hospital and at many clinic locations throughout the community, for children from birth to age 21.
700 Children’s Drive, Columbus, Ohio 43205
(614) 722-2200
Occupational Therapy: nationwidechildrens.org/specialties/occupational-therapy
Speech Pathology: nationwidechildrens.org/specialties/speech-pathology
Physical Therapy: nationwidechildrens.org/specialties/physical-therapy

Nationwide Children’s Hospital (NCH) Physical Medicine & Rehabilitation (PM&R)

Specializes in the diagnosis and management of children with physically disabling conditions. They provide a wide variety of services, including wheelchair and seating evaluations, prosthetic evaluations, rehabilitation services, electrodiagnosis and more.
700 Children’s Drive, Columbus, Ohio 43205
(614) 722-6200
nationwidechildrens.org/physical-medicine-rehabilitation

Next Chapter Book Club (NCBC)

Community-based book club program for adolescents and adults with Down Syndrome, Autism, Cerebral Palsy and other intellectual and developmental disabilities. A small group meets with trained facilitators at bookstores, cafés, and public libraries throughout Franklin County. Anyone can participate, whatever their reading or ability level. Members experience an inclusive community focused on reading to learn together and build friendships, rather than learning to read.
1581 Dodd Drive, Columbus, Ohio 43210
(614) 685-6718
Franklin County: nisonger.osu.edu/adolescent/adolescent-clinics-services/next-chapter-book-club
National Website: nextchapterbookclub.org

Nisonger Center at The Ohio State University (OSU)

Serves: Infants, school-aged children, teens, and adults with intellectual or developmental disabilities. 
The Nisonger Center has a variety of programs for individuals with developmental disabilities, including Down syndrome and autism spectrum disorders. Services include clinical support services, specialized dental programs, inclusive childcare and early childhood education, social programs for teens, TOPS post-secondary education and transitional skills program for adult students at OSU, psychiatric services, and more. Contact the center for program details and eligibility.
1581 Dodd Drive, Columbus, Ohio 43210
Administration: (614) 685-3192 or (855) 983-9955
nisonger.osu.edu

Ohio Departments and County Boards of Developmental Disabilities

The Department of Developmental Disabilities is a statewide system of supports and services for people with developmental disabilities, and their families. Each county in Ohio has its own Board of Developmental Disabilities, which is the place to start for determining eligibility, assessing your needs, and coordinating which services can best support you. Their offices can help you with early intervention programs, healthcare services, waivers and scholarships, job training and employment, unusual incident reporting, and more.

  • Ohio Department of Developmental Disabilities: dodd.ohio.gov
    30 East Broad Street, Columbus, Ohio 43215
    (800) 617-6733
  • Delaware County: dcbdd.org
    7991 Columbus Pike, Lewis Center, Ohio 43035
    (800) 474-9787 or (740) 201-3600
  • Franklin County: fcbdd.org
    2879 Johnstown Road, Columbus, Ohio 43219
    (614) 475-6440
    24-hour Emergency: (614) 464-2743
    FCBDD Location Directory: fcbdd.org/about-us/directory
  • Ohio Association of County Board of Developmental Disabilities: oacbdd.org/index.php
    Represents the county boards throughout Ohio, monitors legislation at the state and national level. Their website lists helpful advocacy information for individuals, families, and professionals.
    73 East Wilson Bridge Road, Worthington, Ohio 43085
    (614) 431-0616
  • Find Your County Board of DD: dodd.ohio.gov/your-family/all-family-resources/4-find-your-county-board

Ohio Department of Medicaid Waiver Services

Waivers are programs that help Ohio Medicaid customers with special needs remain at home instead of being in a nursing home, hospital, or facility. They provide financial assistance to families, and there is typically a waiting list. Services may include personal care, transportation, respite services, supported employment, nutrition services, assistive devices, home modifications and interpreter services. See further information about Ohio waiver programs below.

50 West Town Street, Columbus, Ohio 43215
Consumer Hotline: (800) 324-8680
medicaid.ohio.gov

Prenatal & Postnatal Down Syndrome Resources

Find information about Down Syndrome and other prenatally-diagnosed conditions for expectant parents and new parents:

  • Down Syndrome Pregnancy: Access free, downloadable books from the National Center for Prenatal and Postnatal Resources at the University of Kentucky’s Human Development Institute with compassionate, practical, medically-reviewed information.
    downsyndromepregnancy.org/books
  • Lettercase.org: National clearinghouse and comprehensive training center for accurate, balanced, and up-to-date information about genetic conditions. Find helpful information, resources, and professional trainings.
    (770) 310-3885
    lettercase.org

Ticket to Work

Federally-funded career development program for Social Security disability beneficiaries ages 18 through 64 who want to work. Provides free employment services to help participants decide if working is right for them, prepare for work, find a job, or maintain success while working. Participants receive services such as career counseling, vocational rehabilitation, and job placement and training from authorized Ticket to Work service providers, such as Employment Networks (EN) or your State Vocational Rehabilitation (VR) agency.
(866) 968-7842 or (866) 833-2967 TTY
choosework.ssa.gov


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