Columbus OH
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Growing Up with Health Problems

A Kid Again

With chapters throughout Ohio, A Kid Again provides free fun adventures, hospital visitations and parents’ nights out for families with children who have serious medical illnesses.
777-G Dearborn Park Lane, Columbus, Ohio 43085
(614) 797-9500
akidagain.org

A Special Wish (ASW) Foundation

A non-profit charitable organization dedicated to granting the wishes to qualifying children under the age of 21 who have been diagnosed with a life-threatening disorder.
620 Taylor Station Road, Suite J, Gahanna, Ohio 43230
(614) 258-3168 or (800) 488-9474
aspecialwishfoundation.org

Arthritis Foundation

They provide resources, events, and information to help support children and families on the juvenile idiopathic arthritis (JA) journey. They have a local office that services Central Ohio. Services are available at no-cost and include, but are not limited to, JA Camp, JA Power Pack, JA Conference, JA Transitions, JA INSIGHTS, Advocacy, etc. JA INSIGHTS is an assessment tool uniquely captures the experiences and challenges of what everyday life is like living with juvenile arthritis and related childhood rheumatic conditions.
National Office: 1355 Peachtree Street Northeast, Suite 600, Atlanta, Georgia 30309
Helpline: (800) 283-7800
arthritis.org
JA INSIGHTS: arthritis.org/juvenile-arthritis/insights

Center for Courageous Kids (CCK)

Offers summer camps and family retreat weekends for seriously ill children. Medical care is provided by volunteer physicians and nurses coordinated by a full-time medical director. They provide camps for kids with asthma, cancer, cerebral palsy, diabetes, blood disorders, muscular dystrophy, sickle cell, spina bifida and more.
1501 Burnley Road, Scottsville, Kentucky 42164
(270) 618-2900
courageouskids.org

Comprehensive Adolescent / Adult Transitional Care Home (CATCH) Program

Program provides personalized medical care and social support services to teens and young adults, ages 17 or older, with chronic conditions transitioning from pediatric to adult healthcare. The members of the transition team are transition primary care doctors board certified in pediatrics and internal medicine, specialist doctors, transition coordinators, nurses, social workers and pharmacists. Visit the website for information on how a doctor can make a referral to their clinic.

  • Internal Medicine and Pediatrics at Grandview
    895 Yard Street, Columbus, Ohio 43212
  • Internal Medicine and Pediatrics at Hilliard
    3691 Ridge Mill Drive, Hilliard, Ohio 43026

(614) 293-7980
wexnermedical.osu.edu/primary-care/transitional-care
Center for Autism Services and Transition (CAST): wexnermedical.osu.edu/primary-care/adult-autism-center
Young Adult Diabetes Transition Program: nationwidechildrens.org/specialties/young-adult-diabetes-transition-program
Columbus Ohio Adult Congenital Heart Disease (COACH) Program: nationwidechildrens.org/specialties/adolescent-and-adult-congenital-heart-disease-achd-program

Coping Club

Offers support to kids coping with a health condition, from other kids with similar health conditions, by presenting a collection of parent-generated videos of kids sharing their experiences and encouragement, ways to handle stress, hospital stays and more.
copingclub.com

Courageous Parents Network (CPN)

Helps families and providers caring for children with serious illness. They offer online education tools (e.g., video and handouts), and they provide opportunities to connect with other families and providers, as well as provide advocacy resources and information related to pediatric palliative care. The information provided on the website is also available in Spanish. Visit the website for contact information.
courageousparentsnetwork.org

Do More Foundation

Offers financial assistance for families who need financial help due to a medically needy child. Includes help with utility/rent bills, meal expenses while at the hospital, gas expenses for travel to and from hospital or doctor visits, non-covered medical expenses, non-covered supplies that would aid the child in their treatment and funeral expenses related to the death of a child. Complete an online application to apply for assistance. Visit the website for additional contact information.
PO Box 1981, Pompano Beach, Florida 33061
(954) 857-9059
thedomorefoundation.org

Dream Factory of Southeast Ohio

Healthcare providers can refer their patients, from ages 3-18 who have a chronic illness or disorder, to this national program which offers to help make a child’s dream/wish come true.
PO Box 1674, Chillicothe, Ohio, 45601
(740) 542-1254
dreamfactoryinc.org/southeastohio

First Hand Foundation

Provides funding for children with health-related needs when insurance and other financial resources have been exhausted. Applications must be submitted online, and they cover expenses such as wheelchairs, assistive technology, vehicle modifications and clinical procedures.
2800 Rockcreek Parkway, Kansas City, Missouri 64117
(816) 201-1569
firsthandfoundation.org/case-grants

Flying Horse Farms

Provides a free camp experience for children with serious medical illnesses such as cancer, heart disease, sickle cell disease, asthma and arthritis. 24-hour care is provided by specialized doctors and nurses, and the camp is free. Campers step outside of their sickness to experience activities such as canoeing, swimming, high rope experience and more.
5260 State Route 95, Mount Gilead, Ohio 43338
(419) 751-7077
flyinghorsefarms.org

Imaginary Friend Society

A free kid-friendly short film series covering a wide range of cancer-related topics, including topics like defining cancer itself to chemotherapy, shots, surgery, and MRIs. The videos are offered in English and Spanish.
imaginaryfriendsociety.com

Make A Wish Foundation of Ohio, Kentucky & Indiana

Grants the wishes of children diagnosed with critical illnesses. The eligibility consideration process is started when a wish referral form is submitted to the local chapter. Visit the website to learn about who is eligible for a wish, who can refer a child and how the referral process works.
2545 Farmers Drive, Suite 300, Columbus, Ohio 43235
(614) 923-0555 or (877) 206-9474 Toll-free
wish.org/oki
National website: wish.org

Midwest Genetics Network (MGN)

Provides information and resources to help families learn more about rare disorders diagnosed through newborn screening. Families can find support and learn more about these rare conditions.
midwestgenetics.org/resources/for-families

Nationwide Children’s Hospital (NCH) Connecting Families

A hospital-wide family-to-family (peer-to-peer) mentor program. Connecting Families reaches patients of all diagnoses to link them with a family who has been through a similar treatment paths or life situations.
700 Children’s Drive, Columbus, Ohio 43205
(614) 722-6747
nationwidechildrens.org/connecting-families

Nationwide Children’s Hospital (NCH) Support Groups

Support groups at NCH can connect you with other families and resources in your time of need. Visit the website for support group descriptions.

  • Adolescent & Adult Congenital Heart Disease Online Community
    (614) 722-5622
  • Bariatric Surgery Patient Support Group
    (614) 722-5949
  • Cleft Lip and Palate Support Group
    (614) 962-6366
  • Celiac’s Gluten Free Gang
    (614) 722-3093
  • Neonatal Intensive Care Unit Resources
  • Parents of Murdered Children (POMC)
    (614) 278-3377
  • Seasons for Caring (Hospital Family Bereavement Group)
    (614) 722-5250

700 Children’s Drive, Columbus, Ohio 43205
Case Management Team: (614) 722-6300
nationwidechildrens.org/family-resources-education/support-groups

Patches of Light

Assists with emergencies such as auto repairs, housing for long distance care, airline tickets; Ronald McDonald House fees, extermination and/or purification items for bone-marrow patients’ homes and much more, for families with critically ill children. Visit the website for contact information.
Physical Address: 3972 Brown Park Drive, Suite C, Hilliard, Ohio 42026
Mailing Address: PO Box 153, Hilliard, Ohio 43026
patchesoflight.org


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