Nominate yourself of someone you know so they can have the gift of attending a music concert. This organization reviews and grants these wishes and allows children to have opportunities they wouldn’t have otherwise. Their mission is to inspire hope and healing through the power of music by supporting music therapy and providing live music experiences.
360 Grand Avenue, Oakland, California 94610
(844) 484-3568
www.doitforthelove.org
Provides medical grants that cover a wide variety of clinical, equipment, travel, lodging, and vehicle modification costs related to children’s healthcare needs.
8779 Hillcrest Road, Kansas City, Missouri 64138
(816) 201-1569
oraclehealthfoundation.org/pediatric-grants
Provides a list of accessible dining, transportation, activities, hotels and other resources in and around Columbus that have been reviewed by disability inclusion experts. For specific questions about accessibility at a particular location, contact the location (or source of transportation) for the most up-to-date details.
experiencecolumbus.com/plan-your-visit/accessibility
Assists and supports professionals and families in working together to care and advocate for all youth with special health care needs. The portal provides reliable and useful information about specific conditions and caring for them and knowledge of valuable local and national services and resources. Visit the website for contact information.
medicalhomeportal.org/diagnoses-and-conditions
Represents people with rare disorders. They have programs to help uninsured individuals in getting needed medications, provide a list of support groups for people with rare disorders and information about rare diseases.
National Headquarters: 55 Kenosia Avenue, Danbury, Connecticut 06810
NORD’s Patient Services: (800) 999-6673 or (844) 259-7178 in Spanish
rarediseases.org
Search through their online directory to find information and resources on specific disabilities, arranged in alphabetical order.
cincinnatichildrens.org/patients/child/special-needs/medical-health/conditions
With chapters throughout Ohio, A Kid Again provides free fun adventures, hospital visitations and parents’ nights out for families with children who have serious medical illnesses.
777-G Dearborn Park Lane, Columbus, Ohio 43085
(614) 797-9500
akidagain.org
A non-profit charitable organization dedicated to granting the wishes to qualifying children under the age of 21 who have been diagnosed with a life-threatening disorder.
620 Taylor Station Road, Suite J, Gahanna, Ohio 43230
(614) 258-3186 or (800) 488-9474
aspecialwishfoundation.org
They provide resources, events, and information to help support children and families on the juvenile idiopathic arthritis (JA) journey. They have a local office that services Central Ohio. Services are available at no-cost and include, but are not limited to, JA Camp, JA Power Pack, JA Conference, JA Transitions, JA INSIGHTS, Advocacy, etc. JA INSIGHTS is an assessment tool uniquely captures the experiences and challenges of what everyday life is like living with juvenile arthritis and related childhood rheumatic conditions.
National Office: 1355 Peachtree Street Northeast, Suite 600, Atlanta, Georgia 30309
Helpline: (800) 283-7800
arthritis.org
JA INSIGHTS: arthritis.org/juvenile-arthritis/insights
Offers free summer camps and family retreat experiences for seriously ill children, in a safe, medically supervised environment. Medical care is provided by volunteer physicians and nurses coordinated by a full-time medical director. They provide camps for kids with asthma, cancer, cerebral palsy, diabetes, blood disorders, muscular dystrophy, sickle cell, spina bifida and more.
1501 Burnley Road, Scottsville, Kentucky 42164
(270) 618-2900
courageouskids.org
Providers information for young adults with chronic conditions transitioning from pediatric to adult healthcare.
OSU Wexner Center: wexnermedical.osu.edu/primary-care/transitional-care
Center for Autism Services and Transition (CAST): wexnermedical.osu.edu/primary-care/adult-autism-center
Young Adult Diabetes Transition Program: nationwidechildrens.org/specialties/young-adult-diabetes-transition-program
Columbus Ohio Adult Congenital Heart Disease (COACH) Program: nationwidechildrens.org/specialties/adolescent-and-adult-congenital-heart-disease-achd-program
Offers support to kids coping with a health condition, from other kids with similar health conditions, by presenting a collection of parent-generated videos of kids sharing their experiences and encouragement, ways to handle stress, hospital stays and more.
copingclub.com
Helps families and providers caring for children with serious illness. They offer online education tools (e.g., video and handouts), and they provide opportunities to connect with other families and providers, as well as provide advocacy resources and information related to pediatric palliative care. The information provided on the website is also available in Spanish. Visit the website for contact information.
courageousparentsnetwork.org
Offers financial assistance for families who need financial help due to a medically needy child. Includes help with utility/rent bills, meal expenses while at the hospital, gas expenses for travel to and from hospital or doctor visits, non-covered medical expenses, non-covered supplies that would aid the child in their treatment and funeral expenses related to the death of a child. Complete an online application to apply for assistance. Visit the website for additional contact information.
PO Box 1981, Pompano Beach, Florida 33061
(954) 857-9059
thedomorefoundation.org
Healthcare providers can refer their patients, from ages 3-18 who have a chronic illness or disorder, to this national program which offers to help make a child’s dream/wish come true.
PO Box 1674, Chillicothe, Ohio, 45601
(740) 542-1254
dreamfactoryinc.org/southeastohio
Provides funding for children with health-related needs when insurance and other financial resources have been exhausted. Applications must be submitted online, and they cover expenses such as wheelchairs, assistive technology, vehicle modifications and clinical procedures. Applications are accepted throughout the United States.
8779 Hillcrest Road, Kansas City, Missouri 64138
(816) 201-1569
www.oraclehealthfoundation.org/pediatric-grants
Provides a free, medically safe environment in an outdoor adventure setting for children with serious illnesses and their families. This camp is for youth ages 7-21 who live with serious medical conditions, such as cancer, facial differences, rheumatoid arthritis, rare diseases, cystic fibrosis, and other disorders of the heart, lungs, blood, kidneys and gastrointestinal system. FHF offers adaptive programs with personalized medical care, psychosocial support and nutrition services so that campers can develop positive self-esteem and nurture social bonds. Activities include archery, swimming, ropes courses, arts and crafts, woodshop, nature, boating and fishing.
5260 State Route 95, Mount Gilead, Ohio 43338
(419) 751-7077
flyinghorsefarms.org
A free kid-friendly short film series covering a wide range of cancer-related topics, including topics like defining cancer itself to chemotherapy, shots, surgery, and MRIs. The videos are offered in English and Spanish.
imaginaryfriendsociety.com
Grants the wishes of children diagnosed with critical illnesses. The eligibility consideration process is started when a wish referral form is submitted to the local chapter. Visit the website to learn about who is eligible for a wish, who can refer a child and how the referral process works.
2545 Farmers Drive, Suite 300, Columbus, Ohio 43235
(614) 923-0555 or (877) 206-9474 Toll-free
wish.org/oki
National website: wish.org
Provides information and resources to help families learn more about rare disorders diagnosed through newborn screening. Families can find support and learn more about these rare conditions.
midwestgenetics.org/resources/for-families
A hospital-wide family-to-family (peer-to-peer) mentor program. Connecting Families reaches patients of all diagnoses to link them with a family who has been through a similar treatment paths or life situations.
700 Children’s Drive, Columbus, Ohio 43205
(614) 722-6747
nationwidechildrens.org/connecting-families
Support groups at NCH can connect you with other families and resources in your time of need. Visit the website for support group descriptions.
700 Children’s Drive, Columbus, Ohio 43205
Case Management Team: (614) 722-6300
nationwidechildrens.org/family-resources-education/support-groups
Assists with emergencies such as auto repairs, housing for long distance care, airline tickets; Ronald McDonald House fees, extermination and/or purification items for bone-marrow patients’ homes and much more, for families with critically ill children. Visit the website for contact information.
Physical Address: 3972 Brown Park Drive, Suite C, Hilliard, Ohio 42026
Mailing Address: PO Box 153, Hilliard, Ohio 43026
patchesoflight.org